肿瘤姑息治疗中的沉默阴谋:医疗团队的观点和策略

Ana Carolina da Silva Ferreira, Margarida Isabel Freitas Alvarenga, Maria Francisca Melo Pojal da Silva Rego
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摘要

简介对令人沮丧的消息保持沉默是姑息关怀中的常见现象,涉及病人、家属和医疗团队。这种隐瞒真相的现象--沉默的阴谋--会带来负面影响,值得专业人士关注。研究目的本研究调查并探讨了在肿瘤姑息治疗中,医护人员为防止和干预 "共谋沉默 "而采取的策略。研究方法横断面定性研究,采用解释性现象学分析方法。参与者包括在癌症中心姑息治疗科工作的护士、医生和一名心理学家。对 12 名医护人员进行了半结构化访谈。结果显示参与者的年龄在 31 至 64 岁之间,大多为女性,其中有 10 名护士、1 名医生和 1 名心理学家。通过对访谈的分析,得出了以下主题:对沉默阴谋现象的认识;在姑息关怀中应对沉默阴谋的困难和挑战;专业人员对沉默阴谋的感受;干预和预防沉默阴谋的策略。报告中提到了一些重要的策略,如不强加于人的坦诚交流、倾听导致沉默的动机。结论专业人员意识到了在面对沉默阴谋时说出真相的道德责任。然而,在临床环境和医学教育中,需要不断培训沟通令人沮丧的消息的技巧。
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Conspiracy of Silence in Oncological Palliative Care: Perspectives and Strategies of the Healthcare Team
Introduction: Silence about dismal news is common in palliative care, involving patients, family and the healthcare team. This phenomenon of hiding the truth – conspiracy of silence – has negative consequences and deserves attention from professionals. Objective: This study investigates and explores the strategies used by healthcare professionals to prevent and intervene in the conspiracy of silence in the context of oncological palliative care. Method: Cross-sectional qualitative study using the Interpretative Phenomenological Analysis approach. The participants were nurses, doctors and a psychologist who work in the palliative care unit of a cancer center. A semi-structured interview was applied to a sample of 12 healthcare professionals. Results: The age of the participants varied between 31 and 64 years old, mostly females, ten nurses, one physician and one psychologist. From the analysis of the interviews, the following themes emerged: perceptionof the phenomenon of the conspiracy of silence; difficulties and challenges in dealing with the conspiracy of silence in palliative care; professionals’ feelings about the conspiracy of silence; strategies to intervene and prevent the conspiracy of silence. Important strategies were reported such as honest communication without impositions, listening to the motivations that led to the silence. Conclusion: Professionals are aware of the ethical duty to tell the truth when faced with a conspiracy of silence. However, continuous training is needed to develop skills for communicating dismal news in clinical settings and in medical education.
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