190 转化阿尔茨海默病研究,通过在社区设计健康信息改善痴呆症筛查:定性研究

Yolanda Jackson, Elizabeth K. Rhodus, Nancy G. Harrington
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摘要

目的/目标:本研究让居住在肯塔基州农村地区的黑人成年人参与其中,探讨他们对阿尔茨海默病(AD)的信念、规范、知识、态度和与健康相关的行为(问题 1),以及哪些信息要素与设计旨在鼓励他们接受阿尔茨海默病筛查的健康信息最为相关(问题 2)。方法/研究对象:本定性研究以行为综合模型为指导。参与者是从肯塔基州农村地区的一家宗教机构招募的。50 岁以上的黑人成年人应邀参加了研究,研究包括两个焦点小组。第一组获得了行为决定因素的相关信息(问题 1),并通过征求对阿尔茨海默氏症协会鼓励进行注意力缺失筛查的传单的反馈意见,研究了哪些信息设计元素对黑人成年人很重要(问题 2)。根据第 1 小组的反馈重新设计了讲义。第 2 小组参与了对重新设计的讲义的讨论,并征求了进一步的反馈意见。对焦点小组进行了录音和逐字记录。数据分析包括对焦点小组记录的主题分析和定量分析。结果/预期结果:参与者(N=18)均为女性和黑人,平均年龄为 62 岁。对于问题 1,结果显示:1)对注意力缺失症的有限了解导致了对这种疾病无能为力的感觉,而认识和教育则带来了希望;2)过去的医疗保健经历影响了后来的信念和行为;3)文化影响了信念,"发生在我们家的事,就留在我们家 "的文化规范非常突出。对于问题 2,研究结果表明,针对不同地区的注意力缺失症信息非常重要。适用范围广泛的通用声明对参与者没有吸引力。针对低识字率人群的信息传递、版面设计和格式是最大限度地影响受众的关键。图片可以提示信息并帮助理解。讨论/意义:过去的经历、知识的缺乏和文化规范等障碍对黑人成年人接受注意力缺失症筛查的可能性产生了负面影响,导致他们延迟医疗保健或避免医疗保健。针对特定地区的注意力缺失症健康信息有可能鼓励人们改变与健康有关的行为。
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190 Translating Alzheimer’s Disease Research to Improve Dementia Screening Through Health Message Design in the Community: A Qualitative Study
OBJECTIVES/GOALS: This study engaged Black adults who reside in a rural area of Kentucky to explore their beliefs, norms, knowledge, attitudes, and health-related behaviors about Alzheimer’s disease (AD) (RQ1) and what message elements are most relevant for designing a health message aimed at encouraging them to get screened for AD (RQ2). METHODS/STUDY POPULATION: This qualitative study was guided bythe Integrative Model of Behavior. Participants were recruited from a faith-based institution in rural Kentucky. Black adults aged 50+ years were invited to participate in the study, which consisted of two focus groups. Group 1 gained information about behavioral determinants (RQ1) and examined which message design elements were important to Black adults by asking for feedback on a handout from the Alzheimer’s Association that encouraged AD screening (RQ2). The handout was redesigned based on feedback from Group 1. Group 2 was involved in a discussion of the redesigned handout, asking for further feedback. Focus groups were audio recorded and transcribed verbatim. Data analysis included thematic analysis of transcripts of the focus groups and quantitative analysis. RESULTS/ANTICIPATED RESULTS: Participants (N=18) were all female and Black with a mean age of sixty-two years. For RQ1, Results revealed that 1) limited knowledge of AD led to feelings of not being able to do anything about the disease, whereas awareness and education led to hope; 2) past healthcare experiences informed subsequent beliefs and behaviors, and 3) culture impacted beliefs, with a cultural norm of “what happens in our house, stays in our house” being prominent. For RQ2, results revealed the importance of regionally specific messaging for AD. Generic statements that applied broadly did not appeal to participants. Message delivery, layout, and format for low literacy individuals are key for maximizing audience impact. Pictures give hints about the message and aid in understanding. DISCUSSION/SIGNIFICANCE: Barriers such as past experiences, lack of knowledge, and cultural norms negatively impact the likelihood that Black adults will get screened for AD, resulting in delayed healthcare or healthcare avoidance. Regionally specific health messaging for AD has the potential to encourage modifications in health-related behaviors.
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