杜氏肌肉萎缩症男孩的定时滚动和上升测试:可行性研究。

IF 1 Q3 PEDIATRICS Minerva Pediatrics Pub Date : 2024-04-01 DOI:10.23736/S2724-5276.21.05977-2
Agnieszka Sobierajska-Rek, Joanna Jabłońska-Brudło, Aneta Dąbrowska, W. Wojnicz, Jarosław Meyer-Szary, Jolanta Wierzba
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引用次数: 0

摘要

背景在对杜兴氏肌肉萎缩症患者进行运动评估时,功能活动被广泛使用。据报道,定时项目的作用是疾病进展的早期预后因素。然而,在临床实践中,对杜氏肌营养不良症患者的两项功能活动评估并不广泛:翻身和起立。本研究旨在通过确定维格诺斯量表(VS)、定时起立和 6 分钟步行测试(6MWT)等有效测量方法之间可能存在的相关性,研究 360 度翻滚(翻身)和仰卧起坐(起立)测量方法是否是反映可活动 DMD 儿童功能状态的可行工具。结论研究结果提供了初步的经验证据,说明了翻身和起立测量的可行性和安全性。这些测试在评估 DMD 行动不便患者的功能状态方面具有潜在的临床实用性。
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Timed rolling and rising tests in Duchenne muscular dystrophy ambulant boys: a feasibility study.
BACKGROUND Functional activities are extensively used in motor assessments of patients with Duchenne muscular dystrophy. The role of timed items has been reported as an early prognostic factor for disease progression. However, there are two functional activities that are not widely assessed in clinical practice among Duchenne muscular dystrophy patients: rolling and bed rising. This study aimed to investigate whether the 360-degree roll (roll) and supine to sit-to-edge (bed rise) measurements are feasible tools reflecting the functional status of ambulatory DMD children by establishing possible correlations between validated measures: the Vignos Scale (VS), timed rise from floor and the 6-Minute Walk Test (6MWT). METHODS A total of 32 ambulant boys with DMD were assessed using timed items, the 6MWT and VS. RESULTS The roll and bed rise are correlated with each other. The 6MWT, the floor rise and VS are correlated with the roll and with the bed rise. CONCLUSIONS Findings offer preliminary empirical evidence addressing feasibility and safety of roll and bed rise measurements. There is a potential clinical utility of these tests in assessing functional status of DMD ambulant patients.
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