自闭症儿童及其家庭护理人员参与 "参与进食者计划 "后的结果变化:针对自闭症儿童及其家庭的护理人员喂养干预。

IF 2.1 4区 医学 Q1 REHABILITATION American Journal of Occupational Therapy Pub Date : 2024-05-01 DOI:10.5014/ajot.2024.050444
Brittany M St John, Karla K Ausderau
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引用次数: 0

摘要

重要性:护理人员是以家庭常规和实践为基础、以护理人员为媒介的干预措施的重要合作伙伴。有关作为干预伙伴参与干预如何影响护理者的结果(包括压力和自我效能)的研究很少:评估照顾者参与 "参与进食者计划 "后的结果(压力、自我效能感、积极的喂养反应和信心):设计:准实验性前测-后测设计:参与者:14 名患有自闭症儿童的主要照顾者:有喂养问题的自闭症儿童(2-7 岁)的 14 名主要照顾者:参与性进食计划(Engaged Eaters Program-Telehealth)是一项以照顾者为媒介的为期 6 个月的居家远程医疗喂养干预措施,适用于 2-7 岁的自闭症儿童,包括 24 次干预访问、8 个照顾者培训模块以及营养师咨询:我们评估了儿童喂养挑战严重程度与照顾者结果之间的关系,以及照顾者干预反应的个体差异。我们评估了照顾者的压力(养育压力指数,第四版简表)、自我效能感(家长能力感量表)、积极喂养反应和信心(PFRC;其他评估项目的综合得分),以及个人干预反应(干预前与干预后的得分变化):对个体差异的研究表明,在干预结束时,只有摄入 PFRC 分数低于平均值的护理人员的情况有了明显改善。在压力、自我效能感或 PFRC 方面没有发现明显的群体变化。喂养挑战的严重程度与照顾者的结果没有明显关系:研究结果强调了在让照顾者参与干预时考虑基线实践、效能和照顾者信心的重要性。未来的研究应探讨照顾者的结果与儿童特征之间的微妙关系。通俗摘要:照顾者是基于家庭常规和实践进行喂养干预的重要合作伙伴。在与照护者合作时,职业治疗师应考虑照护者对干预的准备情况和反应,因为干预措施可能会对照护者的养育实践、信心和自我效能产生不同的影响。照护者的反应也可能会影响以照护者为媒介的干预措施的整体效果。立场声明:本文中使用 "以照顾者为媒介 "一词来代替 "以父母为媒介",以涵盖所有类型的照顾者。
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Changes in Caregiver Outcomes After Participation in the Engaged Eaters Program: A Caregiver-Mediated Feeding Intervention for Autistic Children and Their Families.

Importance: Caregivers are essential partners in caregiver-mediated interventions that build on family routines and practices. Research identifying how participation as an intervention partner influences caregivers' outcomes, including stress and self-efficacy, is scarce.

Objective: To evaluate caregiver outcomes (stress, self-efficacy, and positive feeding responses and confidence) after participation in the Engaged Eaters Program.

Design: Quasi-experimental pretest-posttest design.

Setting: In-home via telehealth.

Participants: Fourteen primary caregivers of an autistic child (ages 2-7 yr) with feeding challenges.

Intervention: The Engaged Eaters Program-Telehealth, a caregiver-mediated 6-mo in-home telehealth feeding intervention for autistic children ages 2 to 7 yr that included 24 intervention visits, eight caregiver training modules, and consultation with a dietician.

Outcomes and measures: Relationships between child feeding challenge severity and caregiver outcomes and individual differences in caregivers' intervention responses were evaluated. We assessed caregivers' stress (Parenting Stress Index, Fourth Edition Short Form), self-efficacy (Parent Sense of Competence Scale), Positive Feeding Responses and Confidence (PFRC; composite score of items from other assessments), and individual intervention response using pre- to postintervention change in scores.

Results: Exploration of individual differences revealed that only caregivers with intake PFRC scores below the mean made significant improvements by the end of the intervention. No significant group-level changes were identified for stress, self-efficacy, or PFRC. Feeding challenge severity was not significantly related to caregiver outcomes.

Conclusions and relevance: The results emphasize the importance of considering baseline practices, efficacy, and caregiver confidence when engaging caregivers in intervention. Future research should explore the nuanced relationship between caregiver outcomes and child characteristics. Plain-Language Summary: Caregivers are essential partners with feeding interventions that build on family routines and practices. When working with caregivers, occupational therapists should consider caregivers' readiness for and responses to an intervention because intervention practices may differentially affect caregivers' parenting practices, confidence, and self-efficacy. Caregivers' responses may also affect the overall effectiveness of a caregiver-mediated intervention. Positionality Statement: The term caregiver-mediated in used throughout this article in place of parent-mediated to be inclusive of all types of caregivers.

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来源期刊
CiteScore
3.10
自引率
10.30%
发文量
406
期刊介绍: The American Journal of Occupational Therapy (AJOT) is an official publication of the American Occupational Therapy Association, Inc. and is published 6 times per year. This peer reviewed journal focuses on research, practice, and health care issues in the field of occupational therapy. AOTA members receive 6 issues of AJOT per year and have online access to archived abstracts and full-text articles. Nonmembers may view abstracts online but must purchase full-text articles.
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