评估基于网络的慢性非癌性疼痛自我管理计划的可行性和初步效果:混合方法研究。

IF 2.6 Q2 HEALTH CARE SCIENCES & SERVICES JMIR Human Factors Pub Date : 2024-05-03 DOI:10.2196/50747
Pascale Marier-Deschenes, Anne Marie Pinard, Laura Jalbert, Annie LeBlanc
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引用次数: 0

摘要

背景:在加拿大,患有慢性非癌症疼痛的成年人长期面临公共资助资源不足的问题,金标准的多学科疼痛治疗机构无法满足高额的临床需求。基于网络的自我管理项目能以经济有效的方式增加疼痛治疗的机会,并能改善身体和情绪功能的多个方面。为了满足慢性非癌症疼痛患者对可访问的全自动资源的需求,我们开发了一个基于网络和证据的法国自我管理项目--"为我行动"(APM)。该计划包括疼痛教育和减压策略、正念练习、调整步调、参与体育锻炼、识别和管理思维陷阱、改善睡眠、调整饮食以及维持行为改变:本研究旨在评估 APM 自我管理计划的可行性、可接受性以及在等待慢性疼痛管理专业中心提供专业服务的成年人中的初步效果:我们采用解释性顺序设计进行了一项混合方法研究,包括基于网络的单臂试验和定性半结构式访谈。我们通过名为 "联合显示 "的综合表格来展示这两个阶段的结果:在基线提供自我评估信息的 63 名同意参与者中,干预后的回复率为 70%(44/63),3 个月随访的回复率为 56%(35/63)。总共有 46%(29/63)的参与者完成了计划。我们对 24%(15/63)的参与者进行了访谈。访谈的第一个主题围绕项目的整体接受度、用户友好性和参与性展开。第二个主题强调了微观参与和宏观参与之间的区别。第三个主题深入探讨了所观察到的可能受宏观参与影响的各种效果。参与者强调了影响其自我效能感和采取自我管理策略的特点。我们观察到自我效能、疼痛强度、疼痛干扰、抑郁和灾难化等方面的改善迹象。受访者认为,这些影响以及其他各种影响可能受到宏观层面参与行为改变的影响:这些发现初步证明了 APM 自我管理计划和研究方法是可行的。然而,一些参与者表示至少需要电话提醒和专业人员的最低限度支持,以便在计划的前几周回答问题,从而参与其中。未来随机对照试验的招募策略应侧重于从性别和种族方面吸引更广泛的慢性疼痛患者:试验注册:ClinicalTrials.gov NCT05319652;https://clinicaltrials.gov/study/NCT05319652。
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Assessing the Feasibility and Preliminary Effects of a Web-Based Self-Management Program for Chronic Noncancer Pain: Mixed Methods Study.

Background: In Canada, adults with chronic noncancer pain face a persistent insufficiency of publicly funded resources, with the gold standard multidisciplinary pain treatment facilities unable to meet the high clinical demand. Web-based self-management programs cost-effectively increase access to pain management and can improve several aspects of physical and emotional functioning. Aiming to meet the demand for accessible, fully automated resources for individuals with chronic noncancer pain, we developed a French web- and evidence-based self-management program, Agir pour moi (APM). This program includes pain education and strategies to reduce stress, practice mindfulness, apply pacing, engage in physical activity, identify and manage thinking traps, sleep better, adapt diet, and sustain behavior change.

Objective: This study aims to assess the APM self-management program's feasibility, acceptability, and preliminary effects in adults awaiting specialized services from a center of expertise in chronic pain management.

Methods: We conducted a mixed methods study with an explanatory sequential design, including a web-based 1-arm trial and qualitative semistructured interviews. We present the results from both phases through integrative tables called joint displays.

Results: Response rates were 70% (44/63) at postintervention and 56% (35/63) at 3-month follow-up among the 63 consenting participants who provided self-assessed information at baseline. In total, 46% (29/63) of the participants completed the program. We interviewed 24% (15/63) of the participants. The interview's first theme revolved around the overall acceptance, user-friendliness, and engaging nature of the program. The second theme emphasized the differentiation between microlevel and macrolevel engagements. The third theme delved into the diverse effects observed, potentially influenced by the macrolevel engagements. Participants highlighted the features that impacted their self-efficacy and the adoption of self-management strategies. We observed indications of improvement in self-efficacy, pain intensity, pain interference, depression, and catastrophizing. Interviewees described these and various other effects as potentially influenced by macrolevel engagement through behavioral change.

Conclusions: These findings provided preliminary evidence that the APM self-management program and research methods are feasible. However, some participants expressed the need for at least phone reminders and minimal support from a professional available to answer questions over the first few weeks of the program to engage. Recruitment strategies of a future randomized controlled trial should focus on attracting a broader representation of individuals with chronic pain in terms of gender and ethnicity.

Trial registration: ClinicalTrials.gov NCT05319652; https://clinicaltrials.gov/study/NCT05319652.

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来源期刊
JMIR Human Factors
JMIR Human Factors Medicine-Health Informatics
CiteScore
3.40
自引率
3.70%
发文量
123
审稿时长
12 weeks
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