Sneha Mantri, Jennifer L Purks, Daniel Kinel, Lakshmi Arbatti, Abhishek Hosamath, Allison Allen, Amy Amara, Karen Anderson, Lana M Chahine, Shirley Eberly, Soania Mathur, David Standaert, David Oakes, Daniel Weintraub, Ira Shoulson, Connie Marras
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In Their Own Words: Fears Expressed by People with Parkinson's Disease in an Online Symptom Database.
Parkinson's disease (PD) carries substantial psychosocial burden. Using a database of responses by people with PD reporting up to five "most bothersome problems," we identified 225 fear-based verbatims, which were organized using the framework method into 26 categories. Commonly-reported fears included uncertainty of progression (n = 60, 26.7%), fear of future cognitive impairment (n = 24, 10.7%) and fear of becoming a burden on others (n = 23, 10.2%). Fears in PD are wide-ranging and can constitute the most bothersome aspect of the condition. These data can be used to design interventions to lessen the psychosocial burden of PD.
期刊介绍：
The Journal of Parkinson''s Disease (JPD) publishes original research in basic science, translational research and clinical medicine in Parkinson’s disease in cooperation with the Journal of Alzheimer''s Disease. It features a first class Editorial Board and provides rigorous peer review and rapid online publication.
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