加强肿瘤学方面的兄弟姐妹支持:为面对青少年癌症的家庭提供协作护理。

Canadian Oncology Nursing Journal Pub Date : 2024-04-01 eCollection Date: 2024-01-01 DOI:10.5737/23688076342196
Charlotte Gélinas-Gagné, Miranda D'Amico
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引用次数: 0

摘要

目的:本研究调查了癌症青少年兄弟姐妹的支持系统和需求,揭示了兄弟姐妹在情感和信息方面所面临的挑战。这一主题领域受到的关注相对较少:研究采用定性访谈和主题分析的方法,以深入了解兄弟姐妹的经历和观点。虽然研究的样本量相对较小和参与者的同质性是公认的局限性,但这种方法也有一些优点,包括相关性和不同年龄段参与者的多样性:研究结果表明,医护人员(尤其是护士)在为兄弟姐妹提供情感和信息支持方面发挥着重要作用。建议采取以家庭为中心的护理、社会心理支持、有针对性的干预措施以及持续的研究和教育,以有效满足兄弟姐妹的独特需求:总之,本研究强调了在儿科肿瘤护理中认识和满足兄弟姐妹支持需求的重要性,强调了他们作为家庭系统重要组成部分的作用,并倡导在整个癌症治疗过程中及之后提供全面支持。
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Enhancing sibling support in oncology: Collaborative care for families facing cancer in young people.

Purpose: This study investigates the support systems and needs of siblings of young people with cancer, shedding light on the emotional and informational challenges siblings face. This topic area has had relatively little attention.

Design and methods: Qualitative interviews were conducted, and thematic analysis was employed to gain in-depth insights into the experiences and perspectives of siblings. While the study's relatively small sample size and participant homogeneity are acknowledged limitations, the approach offers several strengths, including relevance and participant diversity across age cohorts.

Results: The findings underscore the essential role of healthcare professionals, particularly nurses, in providing emotional and informational support to siblings. Family-centred care, psychosocial support, tailored interventions, and ongoing research and education are recommended to address the unique needs of siblings effectively.

Conclusion: Overall, this study highlights the importance of recognizing and addressing the support needs of siblings in pediatric oncology care, emphasizing their role as a vital component of the family system and advocating for holistic support throughout the cancer journey and beyond.

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期刊介绍: The Canadian Oncology Nursing Journal is published quarterly in the Winter, Spring, Summer and Fall. The CONJ is the only Canadian publication in cancer nursing. It is a bilingual, peer-reviewed journal dedicated to the interests of the professional nurse who provides care to patients with cancer and their families. The journal endeavours to publish timely papers, promote the image of the nurse involved in cancer care, stimulate nursing issues in oncology nursing and encourage nurses to publish in national media.
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