脑瘫青少年自述的居家参与感想。

Developmental neurorehabilitation Pub Date : 2024-04-01 Epub Date: 2024-05-02 DOI:10.1080/17518423.2024.2347993
Jacinta R Quartermaine, Tanya A Rose, Megan L Auld, Leanne M Johnston
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引用次数: 0

摘要

本研究探讨了患有脑性瘫痪(CP)的年轻人在家参与的情况,并描述了使参与变得更容易或更困难的因素。15 名年龄在 15 至 26 岁之间的患有脑瘫的年轻人提供了有关其居家参与经历的书面反思、照片或视频。我们采用反思性主题分析法对数据进行了分析。自我报告的反思被归纳为 129 个代码,然后是 20 个次主题和 5 个主题,这些主题强调了影响居家参与的重要因素--CP 特征、想法、情绪、设备、环境、支持和包容。大部分患有脊髓灰质炎的青少年认为家庭环境是一个具有包容性的参与场所。
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Reflections on Participation at Home, As Self-Reported by Young People with Cerebral Palsy.

This study explored the home-based participation of young people with cerebral palsy (CP) and described factors that make participation easier or harder. Fifteen young people with CP aged 15 to 26 years provided written reflections, photographs, or videos about their home-based participation experiences. Data were analyzed using reflexive thematic analysis. Self-reported reflections were grouped inductively into 129 codes, then 20 subthemes and 5 themes which emphasized CP characteristics, thoughts, emotions, equipment, environment, supports, and inclusion as important factors influencing home-based participation. Young people with CP largely described the home environment as an inclusive place to participate.

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