与利益相关者进行有实证依据的磋商,促进以权利为本的残疾儿童工作方法。

IF 1.3 Q3 REHABILITATION Frontiers in rehabilitation sciences Pub Date : 2024-04-29 eCollection Date: 2024-01-01 DOI:10.3389/fresc.2024.1322191
Keiko Shikako, Jonathan Lai, Paul Y Yoo, Gail Teachman, Annette Majnemer
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引用次数: 0

摘要

目的:为加强将证据转化为可操作的政策,利益相关者的参与对于将学术研究内容综合、优先排序和背景化为可理解的语言是必要的。在这篇手稿中,我们描述了一个多层次的以证据为基础的利益相关者咨询过程和相关成果,旨在提高对以人权为基础的残疾儿童方法的认识并促进跨部门合作:混合方法参与式行动研究分三步进行:(1) 对同行评议的有关以权利为基础的儿童残疾方法的证据进行文献审查;(2) 与不同领域的研究人员、基层组织、照顾者和残疾青年进行磋商;(3) 与加拿大联邦和省一级的决策者进行建设性对话,讨论磋商结果:结果:利益相关者重视能够对其日常生活的实际方面产生直接影响的人权方法。各组织高度重视采用以权利为本的方法来衡量政策成果,而家长则重视服务的提供,青少年则强调服务的可及性:结论:在儿童残疾问题上实施基于权利的方法可以为政策、服务、残疾儿童的日常生活以及他们周围的生态系统提供支持。它还可以指导研究重点,并创造一种共同语言,促进各部门和有关各方之间的合作。
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Evidence-informed stakeholder consultations to promote rights-based approaches for children with disabilities.

Purpose: To strengthen the translation of evidence to actionable policy, stakeholder engagement is necessary to synthesize, prioritize and contextualize the academic research content into accessible language. In this manuscript we describe a multi-level evidence-based stakeholder consultation process and related outcomes proposed to promote awareness of and foster cross-sectorial collaborations towards human rights-based approaches for children with disabilities.

Methods: Mixed-methods participatory action research done in three steps: (1) A literature review of peer-reviewed evidence on rights-based approaches in childhood disabilities; (2) Consultation with researchers in diverse fields, grassroot organizations, caregivers, and youth with disabilities; (3) A constructive dialogue with decision makers at federal and provincial levels in Canada to discuss consultations results.

Results: Stakeholders value human rights approaches that can have a direct impact on practical aspects of their daily living. Organizations give high importance to adopting rights-based approaches to measure policy outcomes, while parents value service provision and youth emphasize accessibility.

Conclusion: The implementation of rights-based approaches in childhood disabilities can support policy, services, and daily lives of children with disabilities and the ecosystems around them. It can also guide research priorities, and create a common language to foster collaborations across sectors and interested parties.

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