神经残疾儿童的计划内和计划外入院率以及与健康相关的缺课率:使用英格兰的教育和医院关联数据进行人口研究的协议。

Laura Gimeno, A. Zylbersztejn, Ayana Cant, Katie Harron, R. Gilbert
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摘要

背景 神经残疾是指影响大脑和神经系统并导致功能受限的一系列疾病。与没有神经残疾的儿童相比,患有神经残疾的儿童入院率更高,缺课率也更高。然而,对神经残疾儿童与非神经残疾儿童在整个学校期间的入院率和缺课率进行比较的纵向证据却很有限,对计划内护理(如预约)或计划外护理的差异是否最大的了解也很有限。本研究将利用关联的个人健康和教育数据,描述神经残疾儿童和所有其他儿童在整个小学阶段(英国的学前班至六年级,4 至 11 岁)因疾病和医疗原因而计划内和计划外入院和缺课的比率。方法 我们将使用 ECHILD(关联数据的教育和儿童洞察)数据库,该数据库将英格兰的教育和健康记录联系在一起。我们将对 2003 年 9 月 1 日至 2008 年 8 月 31 日期间在英格兰国民健康服务机构资助的医院出生,并在国家资助的学校就读学前班(4/5 岁)的儿童进行小学分组。我们将利用入院记录来识别从出生到小学毕业(6 年级,10/11 岁)期间有神经残疾指标记录的儿童。结果 我们将描述三组儿童的计划内和计划外入院率以及与健康相关的缺课率:在小学入学前首次记录有神经残疾指标的儿童、在小学期间首次记录有神经残疾的儿童以及在小学毕业前没有神经残疾记录的儿童。结论 我们将进一步探讨这些群体之间的差异是否会因小学年级以及社会经济和人口特征的不同而有所变化。
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Planned and unplanned hospital admissions and health-related school absence rates in children with neurodisability: Protocol for a population-based study using linked education and hospital data from England.
Background Neurodisability describes a broad set of conditions affecting the brain and nervous system which result in functional limitations. Children with neurodisability have more hospital admissions than their peers without neurodisability and higher rates of school absence. However, longitudinal evidence comparing rates of hospital admission and school absence in children with neurodisability to peers without neurodisability throughout school is limited, as is understanding about whether differences are greatest for planned care (e.g., scheduled appointments) or unplanned care. This study will describe rates of planned and unplanned hospital admissions and school absence due to illness and medical reasons throughout primary school (Reception to Year 6, ages 4 to 11 in England) for children with neurodisability and all other children, using linked individual-level health and education data. Methods We will use the ECHILD (Education and Child Insights from Linked Data) database, which links educational and health records across England. We will define a primary school cohort of children who were born in National Health Service-funded hospitals in England between 1st September 2003 and 31st August 2008, and who were enrolled in Reception (age 4/5) at state-funded schools. We will use hospital admissions records to identify children who have recorded indicators of neurodisability from birth up to the end of primary school (Year 6, age 10/11). Results We will describe rates of planned and unplanned hospital admissions and health-related school absence for three groups of children: those with a neurodisability indicator first recorded before beginning primary school, those with neurodisability first recorded during primary school, and those without a record of neurodisability before end of primary school. Conclusions We will further explore whether differences between these group vary across primary school years and by socioeconomic and demographic characteristics.
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