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引用次数: 0
摘要
以前从未探讨过与普萘洛尔治疗婴儿血管瘤（IH）相关的治疗负担（BOT）。本研究采用经修订的有效问卷--治疗负担问卷和一对一半结构式访谈来评估普萘洛尔治疗 IH 的治疗负担。在 80 位护理人员中，总体负担得分非常低，为 1.2 分（满分 10 分）；访谈的主题分析将主题分为管理、监控、财务和相关异常。普萘洛尔治疗 IH 的 BOT 非常低，但可以通过提供与喂养频率和低血糖风险相关的基于年龄的风险分层、围绕睡前用药时间的实用建议以及减少生命体征监测频率来进一步降低 BOT。
The burden of treatment of propranolol for infantile hemangiomas: A mixed methods study.
The burden of treatment (BOT) related to propranolol treatment for infantile hemangiomas (IH) has never previously been explored. A modified validated questionnaire, the Treatment Burden Questionnaire, and one-on-one semi-structured interviews were used to assess the BOT for propranolol for IH. Out of 80 caregivers, the overall burden score was very low at 1.2 out of 10; thematic analysis of interviews grouped themes into administration, monitoring, financial, and associated anomalies. The BOT of propranolol for IH is very low but could be reduced further by offering age-based risk stratification related to feeding frequency and risk of hypoglycemia, pragmatic advice around timing of doses before sleep, and reducing frequency of vital sign monitoring.
期刊介绍：
Pediatric Dermatology answers the need for new ideas and strategies for today''s pediatrician or dermatologist. As a teaching vehicle, the Journal is still unsurpassed and it will continue to present the latest on topics such as hemangiomas, atopic dermatitis, rare and unusual presentations of childhood diseases, neonatal medicine, and therapeutic advances. As important progress is made in any area involving infants and children, Pediatric Dermatology is there to publish the findings.
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