智障儿童父母的家庭生活质量:心理压力和父母参与是否重要?

IF 1.5 4区 医学 Q2 EDUCATION, SPECIAL Journal of Intellectual Disabilities Pub Date : 2024-05-21 DOI:10.1177/17446295241254624
Sanyin Cheng, Jiaqi Li, Qiaoqiao Li, Xuxu Li, Yan Luo
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引用次数: 0

摘要

背景:家长的心理压力和改善家庭生活质量(FQoL)是智障儿童家庭持续关注的问题。在中国,我们需要找到进一步减轻家长压力和改善其家庭生活质量的方法。研究方法研究中国大陆智障儿童家长的心理压力、家长参与和 FQoL 之间的相互关系。467名智障儿童家长填写了测量变量的问卷。采用结构方程模型(SEM)来研究两者之间的相互关系。结果显示心理压力直接或间接地影响了家长对 FQoL 的参与。身心反应(PMR)和风险意识(RA)对 FQoL 有直接的积极影响,而乐观希望(OH)对 FQoL 有消极影响。结论心理压力以复杂的方式影响智障儿童父母的 FQoL。应制定相关政策,帮助残疾儿童的父母减轻压力,培养父母的科学参与。
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Family quality of life of parents of children with intellectual disability: Do psychological stress and parental involvement matter?

Background: The psychological stress of parents and improving family quality of life (FQoL) are continuing concerns for families of children with intellectual disability. We need to identify further ways to reduce their stress and improve their FQoL in China. Method: Examine the interrelations between psychological stress, parental involvement, and FQoL for parents with intellectual disability in mainland China. 467 parents of children with intellectual disability completed instruments measuring variables. Structural equation modelling (SEM) was employed to examine the interrelations. Results: Psychological stress, directly and indirectly, influenced parental involvement in FQoL. Physical and mental response (PMR) and risk awareness (RA) had a positive direct effect on FQoL, and optimistic hope (OH) had a negative effect on FQoL. Conclusions: Psychological stress affects FQoL of parents with children with intellectual disability in complex ways. Policies should be developed to help parents with children with disability decrease stress and develop scientific parental involvement.

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来源期刊
CiteScore
3.40
自引率
13.30%
发文量
82
期刊介绍: The principal aim of the journal is to provide a medium for the exchange of best practice, knowledge and research between academic and professional disciplines from education, social and health settings to bring about advancement of services for people with intellectual disabilities. The idea of a practice-led journal is both exciting and timely. This journal serves as a medium for all those involved with people with intellectual disabilities to submit and publish papers on issues relevant to promoting services for people with intellectual disabilities.
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