系统性硬化症患者皮肤硬皮病患者报告结果土耳其版的可靠性和有效性。

IF 16.4 1区 化学 Q1 CHEMISTRY, MULTIDISCIPLINARY Accounts of Chemical Research Pub Date : 2023-06-14 eCollection Date: 2024-03-01 DOI:10.46497/ArchRheumatol.2023.10183
Fulden Sari, Zilan Bazancir Apaydin, Hakan Apaydin, Mehmet Kayaalp, Abdulsamet Erden, Serdar Can Güven, Berkan Armağan, Ahmet Omma, Orhan Kucuksahin, Şükran Erten
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引用次数: 0

摘要

研究目的本研究旨在将硬皮病皮肤患者报告结果(SSPRO)问卷翻译成土耳其语(SSPRO-T),并评估其有效性和可靠性:54名系统性硬化症(SSc)患者(51名女性,3名男性;平均年龄:49.8±10.4岁;年龄范围:22至65岁)参加了2022年10月至2022年12月期间的信度和效度分析。SSPRO-T 的翻译和跨文化改编按照 Beaton 指南中描述的程序进行。对所有参与者进行了SSPRO-T、硬皮病健康评估问卷(SHAQ)、健康评估问卷残疾指数(HAQ-DI)、Skindex-29和患者整体皮肤严重程度的构效性测试。七天后对 SSPRO-T 进行了重新测试,以评估其可靠性:结果:SSPRO-T具有四因素结构。结果:SSPRO-T 具有四因子结构,SSPRO-T 总分及其子组与 SHAQ、HAQ-DI、Skindex-29 和患者整体皮肤严重程度呈正相关。SSPRO-T 总分及各分组:身体影响、情绪影响、身体限制和社会影响(Cronbach's α分别为 0.94、0.80、0.95、0.93 和 0.84)的内部一致性和可靠性都非常好。SSPRO-T 的测试-再测可靠性极佳(r=0.91,p 结论:SSPRO-T 问卷是一种可靠、有效的工具,可用于土耳其 SSc 患者的研究和临床实践。
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Reliability and validity of the Turkish version of Scleroderma Skin Patient-Reported Outcome in patients with systemic sclerosis.

Objectives: This study aimed to translate the Scleroderma Skin Patient-Reported Outcome (SSPRO) questionnaire to the Turkish (SSPRO-T) language and to assess its validity and reliability.

Patients and methods: Fifty-four systemic sclerosis (SSc) patients (51 females, 3 males; mean age: 49.8±10.4 years; range, 22 to 65 years) participated in the reliability and validity analysis between October 2022 and December 2022. The translation and cross-cultural adaptation of the SSPRO-T was applied in accordance with the procedure described by the Beaton guidelines. The SSPRO-T, the Scleroderma Health Assessment Questionnaire (SHAQ), the Health Assessment Questionnaire Disability Index (HAQ-DI), Skindex-29, and patient global skin severity were conducted in all participants for construct validity. The SSPRO-T was retested to assess its reliability after seven days.

Results: The SSPRO-T had a four-factor structure. The total SSPRO-T score and its subgroups correlated positively with SHAQ, HAQ-DI, Skindex-29, and patient global skin severity. The internal consistency and reliability were excellent in overall SSPRO-T and in the subgroups: physical effect, emotional effect, physical limitation, and social effect (Cronbach's α=0.94, 0.80, 0.95, 0.93, and 0.84, respectively). The SSPRO-T had excellent test-retest reliability (r=0.91, p<0.001). In addition, no floor effect or ceiling effect was observed.

Conclusion: The SSPRO-T questionnaire is a reliable and valid tool and can be used in research and clinical practice in Turkish patients with SSc.

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来源期刊
Accounts of Chemical Research
Accounts of Chemical Research 化学-化学综合
CiteScore
31.40
自引率
1.10%
发文量
312
审稿时长
2 months
期刊介绍: Accounts of Chemical Research presents short, concise and critical articles offering easy-to-read overviews of basic research and applications in all areas of chemistry and biochemistry. These short reviews focus on research from the author’s own laboratory and are designed to teach the reader about a research project. In addition, Accounts of Chemical Research publishes commentaries that give an informed opinion on a current research problem. Special Issues online are devoted to a single topic of unusual activity and significance. Accounts of Chemical Research replaces the traditional article abstract with an article "Conspectus." These entries synopsize the research affording the reader a closer look at the content and significance of an article. Through this provision of a more detailed description of the article contents, the Conspectus enhances the article's discoverability by search engines and the exposure for the research.
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