投射心理测试在普拉德-威利综合征患者中的作用。

IF 1.8 4区 医学 Q2 PEDIATRICS Child Care Health and Development Pub Date : 2024-06-03 DOI:10.1111/cch.13289
Yohanna Gonzalez-Ruiz, Anabela Galiana, Jorgelina Stegmann
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引用次数: 0

摘要

简介普拉德-威利综合征(PWS)患者识别和言语表达情绪的能力有限,通常通过行为来表达情绪,本研究旨在评估投射技术(如 "家树人"(HTP)和 "家庭")对普拉德-威利综合征患者的有用性和相关性:方法:我们纳入了在一家罕见病专科机构接受常规跨学科治疗并经基因确认患有 PWS 的患者。我们使用 HTP 和家庭投射技术对所有患者进行了评估。这些工具通常用于普通人群,在这种情况下,也用于轻度至中度智力障碍(包括沟通能力障碍)患者:共纳入了 25 名年龄在 10 至 41 岁之间的 PWS 患者(15 名男性和 10 名女性)。我们发现了与PWS患者行为表型相对应的图形指标,如焦虑、固执、情绪不稳定、难以充分外化和识别情绪、冲动、攻击性特征、社交能力差、需要支持和互动、自我概念低和强迫行为:在本研究中,我们展示了图形技术在阐释 PWS 患者因表达和交流困难而无法表达的行为、情绪和思想方面的作用。
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Role of projective psychological tests in patients with Prader-Willi syndrome

Introduction

The purpose of this study was to evaluate the usefulness and relevance of projective techniques such as house-tree-person (HTP) and family in individuals with Prader-Willi syndrome (PWS), who have a limited ability to identify and verbalize emotions and express them often using behaviors.

Methods

We included individuals with genetic confirmation of PWS immersed in a regular transdisciplinary treatment in an institution dedicated to rare diseases. All individuals were evaluated using the HTP and family projective techniques. These instruments are commonly administered to the general population and, in this case, to people with mild to moderate intellectual disabilities, including difficulties in their communication abilities.

Results

A total of 25 individuals with PWS between 10 and 41 years old (15 men and 10 women) were included. We identified the presence of graphic indicators corresponding to the behavioral phenotype of individuals with PWS, such as anxiety, stubbornness, emotional lability, difficulty in achieving adequate externalization and identification of emotions, impulsivity, aggressive traits, poor social skills, need for support and interaction, low self-concept, and compulsive behaviors.

Conclusions

In the present study, we demonstrated the usefulness of graphic techniques to elucidate aspects of behavior, emotions, and thoughts that individuals with PWS cannot formulate due to expression and communication difficulties.

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来源期刊
CiteScore
3.40
自引率
5.30%
发文量
136
审稿时长
4-8 weeks
期刊介绍: Child: care, health and development is an international, peer-reviewed journal which publishes papers dealing with all aspects of the health and development of children and young people. We aim to attract quantitative and qualitative research papers relevant to people from all disciplines working in child health. We welcome studies which examine the effects of social and environmental factors on health and development as well as those dealing with clinical issues, the organization of services and health policy. We particularly encourage the submission of studies related to those who are disadvantaged by physical, developmental, emotional and social problems. The journal also aims to collate important research findings and to provide a forum for discussion of global child health issues.
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