对洪都拉斯罗阿坦岛残疾状况的初步分析

Julia Lin, Catherine Purnell, Shanzeh Sheikh, Hishi Ulak, Kallie Vallecillo, Dennis Clements
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摘要

了解残疾人(PWDs)的需求对于改善有针对性的医疗保健和资源至关重要。该项目旨在评估洪都拉斯罗阿坦岛残疾人的残疾发生率、使用的资源以及护理和治疗需求。此前几乎没有关于罗阿坦岛残疾问题的研究,洪都拉斯国内也鲜有关于残疾问题的研究。我们对罗阿坦岛上的 581 名社区成员进行了为期 6 周的调查,内容涉及他们本人及其家庭成员的残疾状况,以及残疾人使用的资源。我们还对医生、社区健康宣传员和当地康复诊所的工作人员进行了访谈,以评估岛上残疾人的社会经历和资源需求。在我们调查的 613 名受访者中,有 258 人(42%)患有一种或多种残疾。最常见的残疾是视力障碍、行动障碍和糖尿病。44.98% 的受访者表示没有到任何医疗机构接受治疗。我们发现,罗阿坦缺乏专门针对残疾的资源,社区成员和医疗服务提供者对残疾的定义也不一致。医疗障碍包括歧视、看护负担、缺乏药物、辅助设备和专家以及交通。我们的研究强调,需要在社区内开展更多有关残疾的教育,并增加岛上可获得的残疾专用资源的数量和深度。这项研究是应 "埃斯佩兰萨诊所 "的要求进行的,目的是确定该诊所如何才能更好地为罗阿坦岛的残疾人提供支持,以及发展残疾人日间之家的潜在益处。
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Preliminary analysis of the disability landscape on Roatán, Honduras
Understanding the needs of persons with disabilities (PWDs) is vital to improving targeted healthcare and resources. The project seeks to assess the prevalence of disabilities, resources used, and care and treatment needs for PWDs on Roatán, Honduras. There is little to no prior research about disabilities on the island of Roatán, and few disability studies available in the country of Honduras. We surveyed 581 community members on the island of Roatán over a period of 6 weeks, on questions surrounding the disability status of themselves and their family members, and resources used by PWDs. Interviews were conducted with physicians, promotoras (community health promoters), and staff at the local Rehabilitation Clinic to assess the social experiences and resource needs of PWDs on the island. Of the 613 subjects obtained from our surveys, 258 (42%) had one or more disabilities. The most common disabilities were vision impairment, mobility impairment, and diabetes. 44.98% reported that the PWD did not visit any medical care facility to receive treatment. We found that there was a lack of disability-specific resources on Roatán, and no consistent definition of disability among community members and healthcare providers. Barriers to care include discrimination; caretaker burden; lack of medications, assistive devices, and specialists; and transportation. Our research highlights the need for more education on disabilities within communities, as well as increasing the amount and depth of disability-specific resources accessible on the island. This study was conducted at the request of Clinica Esperanza to determine how it could better support PWDs on Roatán, and the potential benefit of developing a day home for PWDs.
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