我不想让任何人知道我有精神病:早发性精神病青少年如何处理耻辱感。

IF 1.5 4区 医学 Q2 ANTHROPOLOGY Culture Medicine and Psychiatry Pub Date : 2024-09-01 Epub Date: 2024-06-13 DOI:10.1007/s11013-024-09859-3
Dea Gowers Klauber, Sofie Heidenheim Christensen, Anders Fink-Jensen, Anne Katrine Pagsberg
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引用次数: 0

摘要

污名化对成年精神病患者的影响已经得到了充分的证实。然而,人们对患有精神疾病的青少年的污名化经历却知之甚少。本研究通过对 34 名被诊断患有精神病的丹麦青少年(14-19 岁)进行半结构化访谈,探讨了青少年对精神病污名化的体验。在现象学分析的基础上,我们发现鄙视是一种广泛的体验,而精神病通常被认为比并发的精神疾病更具鄙视性。参与者采取不同的策略来应对可能的污名化,尤其是(不)披露的策略。披露既有治疗和规范的作用,也有被污名化的风险,因此需要考虑很多因素。对参与者来说,披露时被理解是一个核心问题,而缺乏他人的理解则是一个持续的挑战。然而,当参与者感觉到被他们倾诉的人理解时,他们就会从中受益,并在一定程度上通过集中他们对精神病和精神疾病的体验,为他们的倾诉创造条件。我们认为,披露既是一种污名化管理策略,也是一种规范性要求,而被理解与否则是一个超越污名定义的挑战:临床试验注册:丹麦卫生与药品管理局:2612-4168。首都地区伦理委员会:H-3-2009-123.ClinicalTrials.gov:NCT01119014。丹麦数据保护局:2009-41-3991。
本文章由计算机程序翻译,如有差异,请以英文原文为准。

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I Didn't Want the Psychotic Thing to Get Out to Anyone at All: Adolescents with Early Onset Psychosis Managing Stigma.

The impact of stigmatisation on adults with mental illnesses has been thoroughly demonstrated. However, little is known about experiences of stigmatisation among adolescents with mental illness. Through semi-structured interviews with 34 Danish adolescents (14-19 years) diagnosed with psychosis, this study explores adolescents' experiences of psychosis stigma. On the basis of phenomenological analysis, we find that stigmatisation is widely experienced, and psychosis is generally regarded as more stigmatising than co-morbid mental illnesses. The participants engage in different strategies to manage possible stigma, especially strategies of (non-)disclosure. Disclosure is experienced as both therapeutic and normative, but also bears the risk of stigmatisation, and is therefore associated with numerous considerations. Being understood when disclosing is central to the participants, and lack of understanding from others is a continuous challenge. Nevertheless, participants experience benefits when feeling understood by people they confide in and can to a degree create the grounds for this through centralising aspects of their experiences of psychosis and mental illness. We argue that disclosure is both a stigma management strategy and a normative imperative, and that being understood or not is a challenge transcending stigma definitions.Clinical trial registration: Danish Health and Medicines Authority: 2612-4168. The Ethics Committee of Capital Region: H-3-2009-123. ClinicalTrials.gov: NCT01119014. Danish Data Protection Agency: 2009-41-3991.

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来源期刊
CiteScore
3.70
自引率
5.90%
发文量
49
期刊介绍: Culture, Medicine, and Psychiatry is an international and interdisciplinary forum for the publication of work in three interrelated fields: medical and psychiatric anthropology, cross-cultural psychiatry, and related cross-societal and clinical epidemiological studies. The journal publishes original research, and theoretical papers based on original research, on all subjects in each of these fields. Interdisciplinary work which bridges anthropological and medical perspectives and methods which are clinically relevant are particularly welcome, as is research on the cultural context of normative and deviant behavior, including the anthropological, epidemiological and clinical aspects of the subject. Culture, Medicine, and Psychiatry also fosters systematic and wide-ranging examinations of the significance of culture in health care, including comparisons of how the concept of culture is operationalized in anthropological and medical disciplines. With the increasing emphasis on the cultural diversity of society, which finds its reflection in many facets of our day to day life, including health care, Culture, Medicine, and Psychiatry is required reading in anthropology, psychiatry and general health care libraries.
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