对多发性硬化症信托基金在线治疗决策辅助工具为计划怀孕提供便利的用户体验进行定性评估。

IF 2.5 Q2 CLINICAL NEUROLOGY Multiple Sclerosis Journal - Experimental, Translational and Clinical Pub Date : 2024-06-11 eCollection Date: 2024-04-01 DOI:10.1177/20552173241262181
Lubna Almouzain, Fiona L Hamilton, Declan Chard, Fiona Stevenson
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引用次数: 0

摘要

背景:对于患有多发性硬化症(MS)的女性患者来说,在计划怀孕(计划生育)时做出治疗决策是一件复杂的事情。决策工具可以帮助这一过程,2016 年,多发性硬化症信托基金推出了在线数字治疗决策工具,为多发性硬化症患者提供支持:通过探讨女性对该工具的内容、界面以及在计划生育背景下的实用性的看法,评估该工具的用户体验;并归纳出改进该工具的建议:方法:30 名参与者采用 "大声思考 "的方法对该工具进行了定性评估。会议使用 Microsoft Teams 在线进行,并进行了录像。自动转录并对数据进行主题分析:妇女们的第一印象是,该工具一下子提供了大量信息,很难接受,而且她们发现很难浏览。虽然该工具有助于她们对治疗方案进行比较,但过滤功能令人困惑,而且与怀孕有关的信息有时与她们的医疗保健医生的建议相矛盾。他们建议对怀孕建议和筛选器重新措辞,更新一些内容,并对界面进行一些改动,以满足用户的认知需求:MS Trust 治疗决策工具在帮助妇女在初步诊断时做出治疗选择方面非常出色。结论:多发性硬化症信托基金的治疗决策工具在帮助妇女进行初步诊断时的治疗选择方面非常出色,但在考虑家庭计划时,该工具目前还不太有用。我们已将建议转达给 MS Trust,其中一些建议现已应用于新的实时版本,其余建议将在未来的更新项目中加以考虑。
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Qualitative user experience evaluation of the MS trust's online treatment decision aid tool's accommodation of planning pregnancy.

Background: Decision-making about treatment when planning a pregnancy (family planning) is complex for women living with multiple sclerosis (MS). Decision tools can help this process, in 2016 MS Trust launched their online digital treatment decision tool to support people with MS.

Objectives: To evaluate user-experience of this tool by exploring women's opinions about its content, interface, and usefulness in the context of family planning; and to synthesize recommendations to improve the tool.

Methods: Thirty participants qualitatively evaluated the tool using Think Aloud methodology. Sessions were conducted online using Microsoft Teams and were video recorded. Transcription was automated and data were thematically analyzed.

Results: Women's first impression was that the tool presented a lot of information at once, which was difficult to take in, and they found it difficult to navigate. Although the tool was helpful in allowing them to compare treatment options, the filters were confusing, and the information related to pregnancy sometimes contradicted advice from their healthcare practitioners. They suggested rewording the pregnancy recommendations and filters, updating some content, and making some changes to the interface to meet users' cognitive needs.

Conclusion: The MS Trust treatment decision tool is excellent in helping women with treatment choices at initial diagnosis. However, it is not currently as useful when considering family plans. Recommendations were conveyed to MS Trust where some are now applied to the new live version and the rest are to be considered for future updating projects.

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来源期刊
CiteScore
4.70
自引率
0.00%
发文量
54
审稿时长
15 weeks
期刊最新文献
Cannabinoids for spasticity in patients with multiple sclerosis: A systematic review and meta-analysis. Treatment effect modifiers of immunotherapies for relapsing-remitting multiple sclerosis-A systematic review and meta-analysis. Cesarian sections in women with multiple sclerosis: A Canadian prospective pregnancy study. Exploring the relationship between neurologists and older persons with multiple sclerosis through the lens of social support theory. Illness representation in patients with multiple sclerosis: A preliminary narrative medicine study.
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