阿拉伯语网络口腔癌和癌前病变内容的质量、可理解性和可操作性评估

Abdullah Alsoghier
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These related to search terms written for healthcare consumers were assessed for website characteristics, quality criteria (4 JAMA benchmarks [authorship, attribution, disclosure, and currency] and Health on the Net seal), and understandability and actionability (Patient Education Materials Assessment Tool). The latter was scored from 0 to 100% based on meeting the criteria. Data representation and analysis were performed using Microsoft Excel and IBM SPSS. Results: Of the screened 140 websites, 70 (50%) were included in the analysis for all search terms, with oral cancer and lichen planus yielding the most relevant websites (19 and 17, respectively). Commercial and not-for-profit organisations created 50% of the analysed websites. The analysed content was mainly presented as medical facts (71%), often without presenting audiovisual aids (61%). 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引用次数: 0

摘要

导言:需要为口腔癌和潜在癌症疾病的高危人群提供书面健康信息,以便及早发现粘膜变化并进行自我护理。这项信息神学研究旨在评估在快速搜索互联网时与这些疾病相关的网络内容和阿拉伯语内容。研究方法初步筛选了 7 项搜索(口腔癌、白斑病、红斑病、口腔黏膜下纤维化、口腔扁平苔藓、口腔苔藓样病变和口腔移植物抗宿主病)中每项搜索产生的前 20 个网站。对这些为医疗保健消费者撰写的相关搜索词进行了评估,包括网站特征、质量标准(4 项 JAMA 基准 [作者、署名、信息披露和时效性] 和 Health on the Net seal)以及可理解性和可操作性(患者教育材料评估工具)。后者根据符合标准的程度从 0 到 100% 打分。数据表示和分析使用 Microsoft Excel 和 IBM SPSS 进行。结果在筛选出的 140 个网站中,有 70 个(50%)被纳入所有搜索词的分析范围,其中口腔癌和扁平苔藓网站的相关性最高(分别为 19 个和 17 个)。商业和非营利组织创建的网站占分析网站的 50%。所分析的内容主要以医学事实的形式呈现(71%),通常不提供视听辅助(61%)。每个网站达到的 JAMA 基准平均为 2.5(满分 4 分),其中 70% 以上的网站往往缺少 "披露 "和 "归属"。与口腔癌和白斑病有关的内容获得的平均质量基准要比其他疾病高得多。52%和 15%的资料在可理解性和可操作性方面达到了可接受的水平(≥70%)。结论这些口腔疾病患者在就诊前或就诊后寻求基于网络的信息时,不太可能找到足够和可靠的内容,他们可以理解并采取相应的行动。因此,医疗保健利益相关者可以考虑在医疗服务中创建和整合可靠的信息资源,以支持患者就其护理计划做出知情决策,并根据沙特阿拉伯 2030 年的医疗保健转型愿景维持以价值为基础的医疗保健服务。
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Assessments of the Quality, Understandability, and Actionability of Arabic Web-Based Content on Oral Cancer and Precancerous Disorders
Introduction: Empowering high-risk individuals to oral cancer and potentially cancerous disorders with written health information is needed for early detection of mucosal changes and self-care. This infodemiological study aimed to assess the web-based and Arabic content related to these disorders when quickly searching the internet. Methods: The top 20 websites yielded from each of the 7 searches were initially screened for eligibility (oral cancer, leukoplakia, erythroplakia, oral submucous fibrosis, oral lichen planus, oral lichenoid lesions, and oral graft-versus-host disease). These related to search terms written for healthcare consumers were assessed for website characteristics, quality criteria (4 JAMA benchmarks [authorship, attribution, disclosure, and currency] and Health on the Net seal), and understandability and actionability (Patient Education Materials Assessment Tool). The latter was scored from 0 to 100% based on meeting the criteria. Data representation and analysis were performed using Microsoft Excel and IBM SPSS. Results: Of the screened 140 websites, 70 (50%) were included in the analysis for all search terms, with oral cancer and lichen planus yielding the most relevant websites (19 and 17, respectively). Commercial and not-for-profit organisations created 50% of the analysed websites. The analysed content was mainly presented as medical facts (71%), often without presenting audiovisual aids (61%). The average JAMA benchmarks achieved per website were 2.5 out of 4, of which “disclosure” and “attribution” were often missing in more than 70% of these websites. Content related to oral cancer and leukoplakia considerably obtained higher average quality benchmarks than other disorders. Acceptable levels for understandability and actionability (≥70%) were found in 52% and 15% of all materials. Conclusion: Patients with these oral disorders seeking web-based information before or after healthcare visits are unlikely to find sufficient and reliable content they can understand and act upon accordingly. Thus, healthcare stakeholders may consider creating and integrating reliable information resources within the health services to support the patients’ informed decision-making on their care plans and to maintain value-based healthcare services in line with Saudi Arabia’s healthcare transformation vision for 2030.
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