Kathrin Giehl PhD , Henk-Jan Mutsaerts PhD , Kristien Aarts PhD , Prof Frederik Barkhof MD , Prof Svenja Caspers PhD , Gaël Chetelat PhD , Marie-Elisabeth Colin MSc , Prof Emrah Düzel MD , Prof Giovanni B Frisoni MD , Prof M Arfan Ikram PhD , Prof Jorge Jovicich PhD , Prof Silvia Morbelli PhD , Prof Wolfgang Oertel MD , Christian Paret PhD , Prof Daniela Perani MD , Prof Petra Ritter PhD , Bàrbara Segura PhD , Laura E M Wisse PhD , Elke De Witte PhD , Prof Stefano F Cappa MD , Prof Thilo van Eimeren MD
{"title":"开放科学时代的脑成像数据共享:如何共享,为何共享?","authors":"Kathrin Giehl PhD , Henk-Jan Mutsaerts PhD , Kristien Aarts PhD , Prof Frederik Barkhof MD , Prof Svenja Caspers PhD , Gaël Chetelat PhD , Marie-Elisabeth Colin MSc , Prof Emrah Düzel MD , Prof Giovanni B Frisoni MD , Prof M Arfan Ikram PhD , Prof Jorge Jovicich PhD , Prof Silvia Morbelli PhD , Prof Wolfgang Oertel MD , Christian Paret PhD , Prof Daniela Perani MD , Prof Petra Ritter PhD , Bàrbara Segura PhD , Laura E M Wisse PhD , Elke De Witte PhD , Prof Stefano F Cappa MD , Prof Thilo van Eimeren MD","doi":"10.1016/S2589-7500(24)00069-4","DOIUrl":null,"url":null,"abstract":"<div><p>The sharing of human neuroimaging data has great potential to accelerate the development of imaging biomarkers in neurological and psychiatric disorders; however, major obstacles remain in terms of how and why to share data in the Open Science context. In this Health Policy by the European Cluster for Imaging Biomarkers, we outline the current main opportunities and challenges based on the results of an online survey disseminated among senior scientists in the field. Although the scientific community fully recognises the importance of data sharing, technical, legal, and motivational aspects often prevent active adoption. Therefore, we provide practical advice on how to overcome the technical barriers. We also call for a harmonised application of the General Data Protection Regulation across EU countries. Finally, we suggest the development of a system that makes data count by recognising the generation and sharing of data as a highly valuable contribution to the community.</p></div>","PeriodicalId":48534,"journal":{"name":"Lancet Digital Health","volume":"6 7","pages":"Pages e526-e535"},"PeriodicalIF":23.8000,"publicationDate":"2024-06-19","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.sciencedirect.com/science/article/pii/S2589750024000694/pdfft?md5=1216633de2e712a8504b7713070a8c8a&pid=1-s2.0-S2589750024000694-main.pdf","citationCount":"0","resultStr":"{\"title\":\"Sharing brain imaging data in the Open Science era: how and why?\",\"authors\":\"Kathrin Giehl PhD , Henk-Jan Mutsaerts PhD , Kristien Aarts PhD , Prof Frederik Barkhof MD , Prof Svenja Caspers PhD , Gaël Chetelat PhD , Marie-Elisabeth Colin MSc , Prof Emrah Düzel MD , Prof Giovanni B Frisoni MD , Prof M Arfan Ikram PhD , Prof Jorge Jovicich PhD , Prof Silvia Morbelli PhD , Prof Wolfgang Oertel MD , Christian Paret PhD , Prof Daniela Perani MD , Prof Petra Ritter PhD , Bàrbara Segura PhD , Laura E M Wisse PhD , Elke De Witte PhD , Prof Stefano F Cappa MD , Prof Thilo van Eimeren MD\",\"doi\":\"10.1016/S2589-7500(24)00069-4\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<div><p>The sharing of human neuroimaging data has great potential to accelerate the development of imaging biomarkers in neurological and psychiatric disorders; however, major obstacles remain in terms of how and why to share data in the Open Science context. In this Health Policy by the European Cluster for Imaging Biomarkers, we outline the current main opportunities and challenges based on the results of an online survey disseminated among senior scientists in the field. Although the scientific community fully recognises the importance of data sharing, technical, legal, and motivational aspects often prevent active adoption. Therefore, we provide practical advice on how to overcome the technical barriers. We also call for a harmonised application of the General Data Protection Regulation across EU countries. Finally, we suggest the development of a system that makes data count by recognising the generation and sharing of data as a highly valuable contribution to the community.</p></div>\",\"PeriodicalId\":48534,\"journal\":{\"name\":\"Lancet Digital Health\",\"volume\":\"6 7\",\"pages\":\"Pages e526-e535\"},\"PeriodicalIF\":23.8000,\"publicationDate\":\"2024-06-19\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://www.sciencedirect.com/science/article/pii/S2589750024000694/pdfft?md5=1216633de2e712a8504b7713070a8c8a&pid=1-s2.0-S2589750024000694-main.pdf\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Lancet Digital Health\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://www.sciencedirect.com/science/article/pii/S2589750024000694\",\"RegionNum\":1,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"MEDICAL INFORMATICS\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Lancet Digital Health","FirstCategoryId":"3","ListUrlMain":"https://www.sciencedirect.com/science/article/pii/S2589750024000694","RegionNum":1,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"MEDICAL INFORMATICS","Score":null,"Total":0}
引用次数: 0
摘要
人类神经成像数据的共享在加速神经和精神疾病成像生物标记物的开发方面具有巨大潜力;然而,在开放科学背景下如何以及为何共享数据方面仍存在重大障碍。在这份由欧洲成像生物标记物集群(European Cluster for Imaging Biomarkers)制定的健康政策中,我们根据在该领域资深科学家中进行的在线调查结果,概述了当前的主要机遇和挑战。尽管科学界充分认识到数据共享的重要性,但技术、法律和动机方面的问题往往阻碍了数据共享的积极采用。因此,我们就如何克服技术障碍提供了实用建议。我们还呼吁欧盟各国统一适用《通用数据保护条例》。最后,我们建议开发一种系统,通过承认数据的生成和共享是对社会的一种极有价值的贡献,使数据变得有价值。
Sharing brain imaging data in the Open Science era: how and why?
The sharing of human neuroimaging data has great potential to accelerate the development of imaging biomarkers in neurological and psychiatric disorders; however, major obstacles remain in terms of how and why to share data in the Open Science context. In this Health Policy by the European Cluster for Imaging Biomarkers, we outline the current main opportunities and challenges based on the results of an online survey disseminated among senior scientists in the field. Although the scientific community fully recognises the importance of data sharing, technical, legal, and motivational aspects often prevent active adoption. Therefore, we provide practical advice on how to overcome the technical barriers. We also call for a harmonised application of the General Data Protection Regulation across EU countries. Finally, we suggest the development of a system that makes data count by recognising the generation and sharing of data as a highly valuable contribution to the community.
期刊介绍:
The Lancet Digital Health publishes important, innovative, and practice-changing research on any topic connected with digital technology in clinical medicine, public health, and global health.
The journal’s open access content crosses subject boundaries, building bridges between health professionals and researchers.By bringing together the most important advances in this multidisciplinary field,The Lancet Digital Health is the most prominent publishing venue in digital health.
We publish a range of content types including Articles,Review, Comment, and Correspondence, contributing to promoting digital technologies in health practice worldwide.