"为什么我们要放弃我的弟弟?"--面临兄弟姐妹临终关怀的青少年未得到满足的需求。

IF 2.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Journal of palliative medicine Pub Date : 2024-11-01 Epub Date: 2024-06-21 DOI:10.1089/jpm.2023.0395
Annushkha Sinnathamby, Le Ye Lee, Grace M C Ng
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引用次数: 0

摘要

青春期是一个充满挑战的基线期,接受临终关怀的兄弟姐妹可能会不可逆转地改变青少年的生活。医疗团队必须了解青少年兄弟姐妹的独特需求和观点。这反过来又有助于预测青少年的悲伤反应,并为父母提供适当的指导。然而,要评估青少年兄弟姐妹的需求并改善对他们的支持,还可以做更多的工作。这可以通过建立一个有效的以需求为基础的调查问卷,授权家庭和多学科团队让兄弟姐妹参与进来,以及将资源转用于为罹患重病的兄弟姐妹提供文化敏感性支持小组。本文提出了一个让青少年圈子中的关键人物参与进来的框架。
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"Why Are we Giving up on my Brother?"-The Unmet Needs of the Adolescent Facing End-of-Life Care in a Sibling.

Adolescence is a challenging time at baseline, and a sibling receiving end-of-life care can alter an adolescent's life irrevocably. It is imperative for the medical team to understand the unique needs and perspectives of such an adolescent sibling. This in turn facilitates the anticipation of an adolescent's grief response, and allows for parents to be appropriately guided. However, more can be done to evaluate the needs of adolescent siblings and improve their support. This can be through establishing a validated needs-based questionnaire, empowering families and the multidisciplinary team to engage siblings, and diverting resources toward culturally sensitive support groups for siblings with critical illness. A framework to involve key players in the adolescent's circle is presented.

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来源期刊
Journal of palliative medicine
Journal of palliative medicine 医学-卫生保健
CiteScore
3.90
自引率
10.70%
发文量
345
审稿时长
2 months
期刊介绍: Journal of Palliative Medicine is the premier peer-reviewed journal covering medical, psychosocial, policy, and legal issues in end-of-life care and relief of suffering for patients with intractable pain. The Journal presents essential information for professionals in hospice/palliative medicine, focusing on improving quality of life for patients and their families, and the latest developments in drug and non-drug treatments. The companion biweekly eNewsletter, Briefings in Palliative Medicine, delivers the latest breaking news and information to keep clinicians and health care providers continuously updated.
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