[偏头痛的认知差距:对偏头痛患者、家庭成员和医生的调查研究]。

Q4 Medicine Clinical Neurology Pub Date : 2024-07-27 Epub Date: 2024-06-22 DOI:10.5692/clinicalneurol.cn-001950
Shiho Suzuki, Mamoru Shibata, Daisuke Danno, Yoshinori Tanizawa, Satoshi Osaga, Masayuki Hamakawa, Mika Komori
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引用次数: 0

摘要

偏头痛是一种很难被患者周围的人所认识的疾病,尽管它给患者带来了很大的困扰。在这项研究中,我们对偏头痛患者、患者家属和治疗偏头痛患者的医生对偏头痛的看法进行了探索性比较。患者和家属对偏头痛的痛苦有着共同的理解,并希望一家人能有更多/更好的时间在一起。然而,尽管家人对偏头痛患者表示同情,但由于家人的不理解和患者对周围环境的担忧,导致患者一方产生了逆来顺受和忍耐的情绪。在医生的医疗护理方面,我们的研究结果表明,了解每位患者的愿望和障碍并提出相应的治疗建议非常重要。为了减轻偏头痛的负担,有必要营造一种环境,提高人们的意识,让患者周围的人理解并支持每位患者感受到的痛苦和希望。
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[The perception gap on migraine: a survey study of the migraine patients, family members, and physicians].

Migraine is a disease that is difficult to be recognized by those around the patients, even though it causes significant hindrances. In this study, we conducted an exploratory comparison of the perceptions on migraine among patients, family members living with them, and physicians treating migraine patients. Patients and family members shared a common understanding on the pain of migraine, and hoped to spend more/better time together as a family. However, although family members felt compassion for the patients, lack of understanding by and patients' concern for the surroundings led to feelings of resignation and endurance on the side of patients. Regarding physicians' medical care, our results suggested the importance to understand the wishes and obstacles of each patient and to propose treatment accordingly. In order to reduce the burden of migraine, it is necessary to create an environment and raise awareness that allows people around the patients to understand and support the pain and hopes that each patient feels.

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来源期刊
Clinical Neurology
Clinical Neurology Medicine-Neurology (clinical)
CiteScore
0.30
自引率
0.00%
发文量
147
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