"这是日常问题:"独居失语症患者的经历。

IF 1.4 4区 医学 Q3 AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY International Journal of Speech-Language Pathology Pub Date : 2024-06-01 Epub Date: 2024-06-24 DOI:10.1080/17549507.2024.2358830
Deborah Hersh, Clare Williamson, Emily Brogan, Mandy Stanley
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引用次数: 0

摘要

目的:独居现象日益增多,并与健康和社会风险相关联。失语症加剧了这些风险,但有关独居与失语症如何相互作用的研究却很少。本研究是对这一问题的初步探索:方法:五名独居的失语症患者参加了两次半结构式访谈,第二次访谈包括分享一件对独居失语症患者具有重要意义的物品。对访谈进行了录音和逐字记录,并通过反思性主题分析进行了分析:结果:四个主题涵盖了失语症患者独居生活的意义建构:人际关系和对他人的依赖;风险、脆弱性和不确定性;孤独感和独居时间;自力更生和保持忙碌的必要性。参与者必须不断处理和重新协商与失语症患者独居有关的日常挑战:结论:独居会增加孤独的风险。对于失语症患者来说,由于沟通方面的困难,社交联系和有意义的活动所提供的孤独感缓冲可能更难实现。虽然经历各不相同,但独居时依赖他人、处理实际和行政事务以及协商风险都是重要的问题。独居、孤独和失语症患者生活的交叉点需要更多的研究,在讨论和规划干预与支持时也需要更明确的临床重点。
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"It's day to day problems:" Experiences of people with aphasia who live alone.

Purpose: Living alone is increasing and associated with health and social risks. Aphasia compounds these risks but there is little research on how living alone interacts with aphasia. This study is a preliminary exploration of this issue.

Method: Five people with aphasia who lived alone participated in two supported semi-structured interviews, with the second interview including sharing an artefact that held significance for living alone with aphasia. Interviews were recorded, transcribed verbatim, and analysed through reflexive thematic analysis.

Result: Four themes encompassed meaning-making about living alone with aphasia: relationships and reliance on others; risk, vulnerability, and uncertainty; loneliness and time alone; self-reliance and the need to keep busy. Participants had to continuously manage and renegotiate daily challenges around living alone with aphasia.

Conclusion: Living alone increases the risk of loneliness. For people with aphasia, the buffer against loneliness provided by social connection and meaningful activity may be more difficult to achieve because of communication challenges. While experiences vary, reliance on others, managing practical and administrative tasks, and negotiating risks are all important issues when alone. The intersection of living alone, loneliness, and living with aphasia needs more research, and more explicit clinical focus when discussing and planning intervention and support.

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来源期刊
International Journal of Speech-Language Pathology
International Journal of Speech-Language Pathology AUDIOLOGY & SPEECH-LANGUAGE PATHOLOGY-REHABILITATION
CiteScore
3.10
自引率
16.70%
发文量
73
审稿时长
>12 weeks
期刊介绍: International Journal of Speech-Language Pathology is an international journal which promotes discussion on a broad range of current clinical and theoretical issues. Submissions may include experimental, review and theoretical discussion papers, with studies from either quantitative and/or qualitative frameworks. Articles may relate to any area of child or adult communication or dysphagia, furthering knowledge on issues related to etiology, assessment, diagnosis, intervention, or theoretical frameworks. Articles can be accompanied by supplementary audio and video files that will be uploaded to the journal’s website. Special issues on contemporary topics are published at least once a year. A scientific forum is included in many issues, where a topic is debated by invited international experts.
期刊最新文献
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