如何开展姑息关怀研究?来自意大利的视角。

Camilla Cocchi, Maria Beatrice Zazzara, Rosa Liperoti, Raffaella Antonione, Sabrina Dispenza, Gino Gobber, Eleonora Meloni, Italo Penco, Maria Adelaide Ricciotti, Graziano Onder
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引用次数: 0

摘要

背景:在西方国家,预期寿命的延长和晚期慢性病患者人数的增加导致了对姑息关怀的更大需求。具体而言,意大利在姑息关怀领域取得了长足的发展,其标志是建立了姑息关怀网络,并在 2022 年推出了一项学术奖学金计划。目的:本文探讨了在开展有效的姑息关怀研究过程中所面临的挑战和可能的解决方案,同时考虑了样本定义、研究环境、结果和伦理问题。在关注意大利国情的同时,本文提出的研究框架也可适用于其他国情和地区:姑息关怀研究是一项复杂而具有挑战性的工作,因为它采用的是整体方法,涵盖了患者及其家属的各种重要方面,包括身体、情感和社会需求。意大利和全世界的经验为应对这些挑战、提高研究方法的严谨性和研究成果的实际应用提供了启示:本文强调了针对姑息关怀的独特性制定方案的重要性,以及为姑息关怀研究提供专项资金的必要性,并呼吁增加对姑息关怀研究的支持和认可。文章倡导提高姑息关怀研究的质量和相关性,促进改善患者预后和加强护理工作。
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How to conduct research in palliative care? A perspective from Italy.

Background: In western countries, the increasing life expectancy and the growing number of individuals with advanced chronic conditions have resulted in a greater demand for palliative care. Specifically, Italy has witnessed substantial growth in the palliative care field, marked by the establishment of Palliative Care Networks and an academic fellowship program in 2022. To further enhance this field, it is crucial to conduct high-quality scientific research that produces results applicable in clinical practice.

Aim: This article explores challenges and potential solutions in conducting effective palliative care research, considering sample definition, research settings, outcomes, and ethical concerns. While focusing on the Italian context, the presented research framework can be applied to other contexts and regions.

Results: Palliative care research is complex and challenging due to its holistic approach, which encompasses various vital dimensions of patients and their families, including physical, emotional, and social needs. The Italian and worldwide experience provides insights into managing these challenges and enhancing the methodological rigor of studies and the practical application of research findings.

Conclusions: This article emphasizes the importance of developing protocols tailored to palliative care's unique characteristics, and the necessity of dedicated funding for palliative care research, calling for increased support and recognition. The article advocates for improvement of the quality and relevance of palliative care studies, promoting better patient outcomes and enhanced caregiving.

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