中国类风湿关节炎患者选择西医、中医和综合疗法的经历:基于访谈和主题分析的研究

IF 2 3区 医学 Q2 MEDICINE, GENERAL & INTERNAL Patient preference and adherence Pub Date : 2024-07-04 DOI:10.2147/ppa.s463218
Ying Hu, Wenhui Zhu, Xiaocong Wang, Yuefan Yu, Kangle Shi, Qinggang Meng
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引用次数: 0

摘要

研究背景这项定性研究是前瞻性混合方法研究的一部分,旨在深入了解中国类风湿关节炎(RA)患者的医疗经历和疾病认知。具体而言,该研究探讨了类风湿关节炎患者对疾病的认知如何受到他们所接受的诊断和治疗的影响:方法:邀请正在接受治疗的 RA 患者参与这项定性研究。对 18 名患者进行了面对面的半结构化访谈,并采用主题分析法对收集到的数据进行了分析:本研究的 18 名参与者的平均年龄(标清)为 58 岁,中位病程为 6.5 年,以女性为主(18 人中有 17 名女性)。定性分析确定了两个主题和六个次主题:1.患者的治疗经历:疾病的发现、误诊和误治以及患者的治疗选择;2.对疾病的感受:心理影响、对疾病的反思以及对治疗的期望:本研究提供了宝贵的观点和数据,有助于加深对患者疾病认知与医疗选择之间关系的理解。
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Experiences of Chinese Rheumatoid Arthritis Patients Who Chose Western Medicine, Traditional Chinese Medicine, and a Combination of Treatments: A Study Based on Interviews and Thematic Analysis
Background: This qualitative study, part of a prospective mixed-methods research, aimed to gain insights into the medical experiences and disease perceptions of Chinese patients living with rheumatoid arthritis (RA). Specifically, the study examined how RA patients’ perceptions of their disease were influenced by the diagnosis and treatment they receive.
Methods: RA patients undergoing treatment were invited to participate in this qualitative study. Face-to-face semi-structured interviews were conducted among 18 patients, and the collected data were analyzed using thematic analysis.
Results: The 18 participants in this study had a mean (SD) age of 58, a median disease duration of 6.5 years, and a predominance of female subjects (17 out of 18). The qualitative analysis identified two themes with six sub-themes: 1. Patients’ experiences of treatment: discovery of the disease, misdiagnosis and mistreatment, and patients’ treatment choices; 2. Feelings about the disease: psychological impact, reflections on the disease, and expectations of treatment.
Conclusion: This study provides valuable perspectives and data to enhance the understanding of the relationship between patients’ illness perceptions and their healthcare choices.

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来源期刊
Patient preference and adherence
Patient preference and adherence MEDICINE, GENERAL & INTERNAL-
CiteScore
3.60
自引率
4.50%
发文量
354
审稿时长
6-12 weeks
期刊介绍: Patient Preference and Adherence is an international, peer reviewed, open access journal that focuses on the growing importance of patient preference and adherence throughout the therapeutic continuum. The journal is characterized by the rapid reporting of reviews, original research, modeling and clinical studies across all therapeutic areas. Patient satisfaction, acceptability, quality of life, compliance, persistence and their role in developing new therapeutic modalities and compounds to optimize clinical outcomes for existing disease states are major areas of interest for the journal. As of 1st April 2019, Patient Preference and Adherence will no longer consider meta-analyses for publication.
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