慢性呼吸系统疾病决策的考虑要点。

Wakae Maeda, K M Saif-Ur-Rahman, Tsukasa Muraya, Yoshihisa Hirakawa
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引用次数: 0

摘要

目的:尽管多学科团队的动态讨论对于生命末期护理管理和有关慢性阻塞性肺病(COPD)的决策至关重要,但人们对讨论内容的细节仍然知之甚少。本研究旨在确定慢性呼吸系统疾病患者决策过程中的基本考虑因素,以加强基于共识的方法。材料与方法:对日本社区已发表的有关慢性呼吸系统疾病患者临终关怀的临床病例报告的焦点小组对话进行了定性内容分析。这些病例于 2021 年 2 月通过 Igaku Chuo Zasshi (ICHUSHI) 和谷歌进行搜索,搜索时使用了以下关键词:"COPD"、"慢性呼吸系统疾病 "和 "临终关怀"。共有 41 名医护人员参加了焦点小组讨论。讨论结果定性内容分析产生了四大主题:不可预测的疾病预后和阶段、患者对疾病严重程度的认识不足、急性加重和家庭氧疗(HOT)。参与者认为,慢性阻塞性肺病等慢性呼吸系统疾病的严重程度和预后评估是加强患者决策的核心讨论点。研究结果还表明,医疗服务提供者会评估病情急性加重对患者健康状况和决策的影响。结论该研究再次证实了知情同意对于慢性呼吸系统疾病患者的重要性。它详细介绍了在对疾病严重程度进行全面评估后,如何向患者提供标准化 HOT 的个性化解释。这种方法可确保患者充分理解急性加重所导致的不可预知性和病情的不同阶段。
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Consideration points in the decision making in chronic respiratory diseases.

Objective: Even though dynamic multidisciplinary team discussions are crucial for end-of-life care management and decisions concerning chronic obstructive pulmonary disease (COPD), the details of the discussion contents remain poorly understood. This study aimed to identify essential considerations in decision-making for patients with chronic respiratory diseases to enhance a consensus-based approach. Materials and Methods: A qualitative content analysis of focus group conversations on published clinical case reports in the Japanese community about end-of-life care for patients with chronic respiratory disorders was conducted. The cases were searched through Igaku Chuo Zasshi (ICHUSHI) and Google in February 2021, using the keywords: "COPD", "chronic respiratory diseases", and "end-of-life care". A total of 41 healthcare professionals participated in the focus group discussions. Results: Four major themes evolved from the qualitative content analysis: unpredictable disease prognosis and stages, low awareness of patients on disease severity, acute exacerbations, and home oxygen therapy (HOT). The participants perceived that assessment of severity and prognosis in chronic respiratory diseases such as COPD was a core discussion point to enhance patients' decision-making. The study's findings also indicated that healthcare providers evaluate the influence of acute aggravation of the condition on patients' perceived health status and decision-making. Conclusion: The study reaffirms the significance of informed consent in patients with chronic respiratory disease. It details how, after a thorough assessment of disease severity, patients are given personalized explanations of standardized HOT. This approach ensures they fully understand the unpredictable nature and various stages of their condition resulting from acute exacerbations.

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