如何成功增强社区应对死亡、濒死和丧亲之痛的能力?

4区 医学 Q2 Nursing Annals of palliative medicine Pub Date : 2024-07-01 Epub Date: 2024-07-08 DOI:10.21037/apm-23-598
Sophie Meesters, Karin Ohler, Raymond Voltz, Frank Schulz-Nieswandt, Sabine Eichberg, Julia Strupp, Kerstin Kremeike
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引用次数: 0

摘要

背景:慈悲社区旨在增强人们应对死亡、临终和丧亲之痛的能力。它们还打算为人们在生命末期获得护理和支持提供便利。然而,人们需要系统地了解如何为公民实现理想的结果,以及有关开发、实施和评估的见解。本研究旨在评估德国仁爱城市 "科隆关爱社区"(CCC)成员的观点,并报告其实际实施情况:方法:"科隆关爱社区 "由一个全市圆桌会议、一个指导小组、一个协调办公室和四个工作小组组成,工作小组分布在已开展活动的地区。我们与三个工作组的九名成员进行了两次定性焦点小组讨论。我们使用 MAXQDA 2022 版进行了定性内容分析,并将结果纳入逻辑模型 "吞吐量模型":在评估时,与会者认为 CCC 的结构是适当的,但对它们之间的合作和透明度提出了批评。其中一个关键问题是需要一个协调机构。他们强调联邦机构的支持是一个关键因素,但同时也指出公民参与不足。将结果转化为 "吞吐量模型 "突出了社区协调委员会应解决的四个方面的问题:(I) 需要建立邻里网络,以加强公民支持;(II) 需要让人们在日常生活中了解这些问题;(III) 需要将许多现有的支持措施更好地联系起来,并使其更容易获得;(IV) 必须保证适当的医疗保健服务结构:结论:所述的自上而下的方法,在城市参与和现有倡议的支持下,可以促进大城市自下 而上的公民参与模式的发展。然而,市民的积极参与似乎是一个挑战。吞吐量模型是绘制工作流程图和制定评估计划的合适基础。
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How can a community be successfully empowered to deal with death, dying, and bereavement?-formative evaluation of the Caring Community Cologne using focus groups.

Background: Compassionate communities aim to empower people to deal with death, dying, and bereavement. They also intend to facilitate access to care and support at the end of life. However, there is a need for systematic knowledge on how to achieve the desired outcomes for citizens and for insights regarding the development, implementation, and evaluation. The aim of this study was to assess the views of members of a German Compassionate City, the "Caring Community Cologne" (CCC), and to report on its practical implementation.

Methods: The CCC consists of a citywide Round Table, a Steering Group, a Coordination Office and four Working Groups in areas where activities are already in place. We conducted two qualitative focus groups with nine members of three Working Groups. The transcripts were analysed with qualitative content analysis, using MAXQDA version 2022, and results were transferred into the logic model "Throughput Model".

Results: At the time of evaluation, participants felt that the structures of the CCC were adequate, but criticised the cooperation and transparency between them. A key aspect of this was the requirement for a coordinating body. They stressed the support of federal institutions as a key factor, while at the same time describing insufficient citizen involvement. The transfer of the results into the Throughput Model highlighted four areas that the CCC should address: (I) neighbourhood networks need to be established to strengthen civic support; (II) people need to be made aware of the issues by making them accessible in their everyday lives; (III) the many existing support initiatives need to be better linked and made more accessible; (IV) adequate healthcare service structures have to be guaranteed.

Conclusions: The top-down approach described, supported by the city's engagement and involving existing initiatives can facilitate the development of a bottom-up civic engagement model in a large city. However, active citizen involvement appeared to be a challenge. The Throughput Model was a suitable basis for mapping work processes and developing evaluation plans.

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来源期刊
Annals of palliative medicine
Annals of palliative medicine Medicine-Anesthesiology and Pain Medicine
自引率
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发文量
231
期刊介绍: Annals of Palliative Medicine (Ann Palliat Med; Print ISSN 2224-5820; Online ISSN 2224-5839) is an open access, international, peer-reviewed journal published quarterly with both online and printed copies since 2012. The aim of the journal is to provide up-to-date and cutting-edge information and professional support for health care providers in palliative medicine disciplines to improve the quality of life for patients and their families and caregivers.
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