共同设计供阿片类药物使用障碍患者使用的数字健康工具:App4Independence (A4i-O)。

Jessica N D'Arcey, Leah Tackaberry-Giddens, Sana Junaid, Wenjia Zhou, Lena Quilty, Matthew Sloan, Sean A Kidd
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引用次数: 0

摘要

背景:阿片类药物使用障碍(OUD)可以说是死亡率最高的精神疾病;在加拿大和美国,与阿片类药物相关的死亡被确定为意外死亡的头号原因。针对 OUD 的专业护理通常被描述为缺乏、支离破碎,并且经常出现脱离治疗的情况。即使在脱离期间,数字健康策略也可支持与循证资源的连接。然而,持续参与数字干预仍是一个障碍,因此,专家建议采用共同设计的方法来开发干预措施:本研究概述了一个定性共同设计项目的结果,该项目让 6 名生活专家和 8 名临床专家参与一系列焦点小组和访谈,以调整现有干预措施,使其适用于 OUD。对焦点小组和访谈进行了记录和转录,然后进行了主题分析。这一共同设计过程是一个大型项目的第一阶段,该项目将开发一种针对 OUD 群体的新型数字健康干预措施:结果:对记录誊本进行了主题分析,并将主题分为跨领域主题、可行性和参与度以及具体特征。每个主题又分为具体的次主题,设计团队对这些次主题进行了审查,并为数字健康平台的设计提供了依据。由此产生的主要方向包括:创建一个心理安全的数字空间,为作为多方面疾病的 OUD 整理资源,以及从生活和临床专家的角度注意实施障碍。文章中将详细讨论其具体特点:生活专家和临床医生强烈支持将数字工具整合到 OUD 护理中。需要继续开展工作,以更好地了解技术在现有 OUD 结构中的作用,以及数字同伴支持和创建有效、安全的社会联系等关键功能的实施情况。这项研究还验证了共同设计是数字医疗开发的重要步骤。
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Co-Design of a Digital Health Tool for Use by Individuals With Opioid Use Disorder: App4Independence (A4i-O).

Background: Opioid use disorder (OUD) has arguably the highest mortality rate of mental health conditions; opiate-related deaths are identified as the number one cause of accidental deaths in Canada and the United States. Specialized care for OUD is often described as lacking, fractured, and with frequent periods of disengagement. Digital health strategies may support connection to evidence-based resources even during periods of disengagement. However, sustained engagement in digital interventions remains a barrier, and as such, experts recommend using co-design approaches to develop interventions.

Methods: The current study outlines the results from a qualitative co-design project that engaged 6 lived experts and 8 clinical experts in a series of focus groups and interviews to adapt an existing intervention for use in OUD. Focus groups and interviews were recorded and transcribed before undergoing thematic analysis. This co-design process is the first stage of a larger project that will lead to the development of a novel digital health intervention for OUD populations.

Results: Transcripts underwent thematic analysis, and themes were divided into Crosscutting Themes, Feasibility and Engagement, and Specific Features. Each theme was divided into specific subthemes, which were reviewed by the design team and informed the design of the digital health platform. Key resulting directions included creating a psychologically safe digital space, curating resources for OUD as a multifaceted condition, and being mindful of barriers to implementation from both lived and clinical expert perspectives. Specific features are discussed in detail in the article.

Conclusion: Lived experts and clinicians strongly supported integrating digital tools into OUD care. Ongoing work is needed to better understand the role of technology in existing OUD structures as well as the implementation of key features such as digital peer support and creating effective and safe social connections. This study also validates co-design as an essential step in digital health development.

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