当生命预期短暂时:产前合作护理案例指南》。

Q2 Medicine NeoReviews Pub Date : 2024-08-01 DOI:10.1542/neo.25-8-e486
Sharen Wilson, Krista Mehlhaff
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引用次数: 0

摘要

胎儿健康检测和新生儿护理方面的进步改善了对结果的预测,但却超过了治疗方法的发展速度,使一些家庭面临着婴儿预期寿命短这一令人心碎的现实。胎儿生命垂危的家庭必须做出艰难的决定,包括终止妊娠的可能性、围产期姑息治疗的选择以及新生儿复苏的程度。能否获得人工流产服务对决策至关重要,这也凸显了姑息治疗作为一种选择的重要性。围产期姑息治疗项目提供重要的支持,在整个怀孕、分娩和死亡过程中尊重婴儿和家庭。它们为孕妇、伴侣和新生儿提供体贴入微的关怀,将其完美地融入标准的孕期和分娩护理中。无论是通过专门的团队还是有组织的系统,成功的计划都会优先考虑家庭的愿望、目标和个人优先事项。"无论婴儿的生命长短或患病时间长短,这都是他们的一生。婴儿和家庭理应得到技术娴熟、富有同情心的关注,理应在整个过程中得到安全网的保护,理应得到强调在这些日子、这些小时、甚至这些时刻充分生活的姑息关怀方法"。(1).
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When Life Is Expected to Be Brief: A Case-Based Guide to Prenatal Collaborative Care.

Advances in fetal health detection and neonatal care have improved outcome predictions but have outpaced the development of treatments, leaving some families facing the heartbreaking reality of their baby's short life expectancy. Families with a fetus that has a life-limiting condition must make tough decisions, including the possibility of termination, perinatal palliative care options, and the extent of newborn resuscitation. Access to abortion services is crucial in decision-making, underscoring the significance of palliative care as an option. Perinatal palliative care programs offer vital support, honoring the baby and family throughout pregnancy, birth, and death. They provide compassionate care for pregnant individuals, partners, and newborns, integrating seamlessly into standard pregnancy and birth care. Successful programs prioritize families' desires, goals, and personal priorities, whether through a dedicated team or an organized system. "Regardless of the length of a baby's life or duration of illness, it is their lifetime. The infant and family deserve skilled and compassionate attention to their plight; a safety net throughout the experience; a palliative care approach emphasizing living fully those days, hours, and even moments." (1).

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来源期刊
NeoReviews
NeoReviews Medicine-Pediatrics, Perinatology and Child Health
CiteScore
2.20
自引率
0.00%
发文量
110
期刊介绍: Co-edited by Alistair G.S. Philip, MD, FAAP, and William W. Hay Jr., MD, FAAP, NeoReviews each month delivers 3 to 4 clinical reviews, case discussions, basic science insights and "on the horizon" pieces. Written and edited by experts, these concise reviews are available to NeoReviews subscribers at http://neoreviews.aappublications.org. Since January 2009, all clinical articles have been mapped to the American Board of Pediatrics (ABP) content specifications in neonatology.
期刊最新文献
A Late Preterm Neonate With a Small Chest. Applications of Metabolomics and Lipidomics in the Neonatal Intensive Care Unit. Decoding Hearts: Genetic Insights and Clinical Strategies in Congenital Heart Disease. Effects of Assisted Reproductive Technology on Genetics, Obstetrics, and Neonatal Outcomes. Managing Fetal Anemia: A Case of Parvovirus Infection in Pregnancy.
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