作为叙事修复的儿科肿瘤护理:修复中断的家庭传记和受损的道德认同。

IF 1.9 4区 医学 Q3 PUBLIC, ENVIRONMENTAL & OCCUPATIONAL HEALTH Health Pub Date : 2024-08-05 DOI:10.1177/13634593241270955
Monica L Molinaro, Jessica Polzer, Debbie Laliberte Rudman, Marie Savundranayagam
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引用次数: 0

摘要

借鉴阿瑟-弗兰克(Arthur Frank)的叙事修复概念,我们考虑了儿科肿瘤科护士如何恢复和重新讲述那些因孩子被诊断出癌症并死于癌症而偏离人生轨迹的患者和家属的叙事,以及他们自己作为护理人员的叙事。弗兰克认为,当一个人的人生故事因慢性疾病或危及生命的疾病而陷入困境时,讲故事是一种方式,可以将一个人的传记重新定位到一个新的结局,修复疾病经历造成的叙事残骸。在这项对加拿大安大略省九名儿科肿瘤护士进行的关键性叙事研究中,我们强调了护士如何通过身体、叙事和道德上的接近,与病人和家属的疾病叙事纠缠在一起,以及如何发展这种叙事知识为护士提供机会,引导家属进入新的领域。此外,我们还研究了护士在无法代表儿科癌症患者采取行动的情况下,如何重新讲述和修复自己作为 "好 "护理者的身份。这些研究结果通过将叙事修复视为儿科肿瘤护理中的一个关系过程,为有关疾病叙事的文献做出了贡献。
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Pediatric oncology caregiving as narrative repair: Restor(y)ing disrupted family biographies and damaged moral identities.

Drawing on Arthur Frank's conceptualization of narrative repair, we consider how pediatric oncology nurses restore and re-story the narratives of patients and families whose biographies have been thrown off course by the diagnosis and death of a child from cancer, as well as their own narratives as caregivers. Frank argued that when one's life story is shipwrecked by chronic or life-threatening illness, storytelling is way to reorient one's biography to a new ending, repairing the narrative wreckage created by the illness experience. In this critical narrative study with nine pediatric oncology nurses in Ontario, Canada, we highlight how, through physical, narrative, and moral proximity, nurses become entwined in their patients' and families' illness narratives, and how developing this narrative knowledge provides nurses with opportunities to steer families onto new terrain. As well, we examine how nurses re-story and repair their own identities as "good" caregivers in situations when they are prevented from acting on behalf of their pediatric cancer patients. These findings contribute to literature on illness narratives by considering narrative repair as a relational process enacted as part of pediatric oncology caregiving.

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来源期刊
Health
Health Multiple-
CiteScore
4.90
自引率
0.00%
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0
期刊介绍: Health: is published four times per year and attempts in each number to offer a mix of articles that inform or that provoke debate. The readership of the journal is wide and drawn from different disciplines and from workers both inside and outside the health care professions. Widely abstracted, Health: ensures authors an extensive and informed readership for their work. It also seeks to offer authors as short a delay as possible between submission and publication. Most articles are reviewed within 4-6 weeks of submission and those accepted are published within a year of that decision.
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