孕期患苯丙酮尿症的经历与母婴关系的发展:定性研究。

IF 2.6 2区 医学 Q2 INFORMATION SCIENCE & LIBRARY SCIENCE Qualitative Health Research Pub Date : 2025-01-01 Epub Date: 2024-08-07 DOI:10.1177/10497323241266750
Charlotte Harris, Michael Larkin, Anne-Marie Walker, George Johnson
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引用次数: 0

摘要

苯丙酮尿症(PKU)是一种罕见的代谢性疾病,其特点是无法代谢许多食物中的苯丙氨酸(Phe)。患有 PKU 的孕妇必须严格遵守低 Phe 饮食。否则会导致胎儿畸形或妊娠失败。因此,妊娠过程受到严密的临床监测,并以饮食管理为主,几乎没有为妇女的情感体验留出 "空间"。本文探讨了孕期北京大学营养不良症对情绪的影响,以及这种影响如何影响产前亲子关系。根据对六名患有北京大学营养不良症的妇女在怀孕期间进行的访谈,本文探讨了她们不寻常的、以前未被记录的经历。访谈过程中的形象塑造使妇女们得以揭示其经历中可能被隐藏的方面。对访谈记录和图像的解释现象学分析产生了五个主题,概括了妇女的经历。一些主题重申了之前的研究结果,例如,与北京大学妊娠相关的巨大认知负担,以及专家和非正式支持对成功管理妊娠的重要性。然而,我们也发现了一些新的认识,包括对这些妊娠所带来的情感负担的丰富描述,以及妇女用来处理这种负担的策略。对婴儿安全的焦虑是她们经历中的核心问题,并探讨了这种焦虑对产前亲子关系的影响。这篇文章呼吁在北京大学孕妇的情绪方面为妇女提供更多正式和非正式的支持,例如,建立 "依恋意识 "服务,为妇女的焦虑提供支持,促进产前牢固的依恋关系,从而在整个孕期及以后保护母婴的心理健康。
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The Experience of Phenylketonuria in Pregnancy and the Developing Maternal-Infant Relationship: A Qualitative Study.

Phenylketonuria (PKU) is a rare metabolic condition characterised by an inability to metabolise phenylalanine (Phe), found in many foods. When pregnant with PKU, women must adhere to a strict low-Phe diet. If they do not, foetal abnormalities or pregnancy loss can occur. Pregnancies are therefore closely clinically monitored and dominated by dietary management, leaving little "space" for women's emotional experience. This article explores the emotional impact of PKU during pregnancy and how this effects pre-natal bonding. Based on interviews with six women with PKU, conducted whilst they were pregnant, this article explores their unusual and previously undocumented experience. Image-making during interviews allowed women to uncover aspects of their experience that might otherwise have remained hidden. Interpretative phenomenological analysis of the transcripts and images generated five themes summarising the women's experiences. Some themes reiterated findings from previous studies, for example, the huge cognitive burden associated with PKU pregnancies and the importance of both expert and informal support to successful pregnancy management. However, new understanding also emerged, including rich description of the emotional load of these pregnancies and strategies that women use to manage this. Anxiety about baby safety was central to their experiences, and the effect of this on pre-natal bonding was explored. This article calls for increased formal and informal support for women with the emotional aspects of their PKU pregnancies, for example, the creation of "attachment-aware" services that support women with their anxiety, promoting strong pre-natal attachment and subsequently protecting maternal and infant mental health throughout pregnancy and beyond.

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来源期刊
CiteScore
6.80
自引率
6.20%
发文量
109
期刊介绍: QUALITATIVE HEALTH RESEARCH is an international, interdisciplinary, refereed journal for the enhancement of health care and to further the development and understanding of qualitative research methods in health care settings. We welcome manuscripts in the following areas: the description and analysis of the illness experience, health and health-seeking behaviors, the experiences of caregivers, the sociocultural organization of health care, health care policy, and related topics. We also seek critical reviews and commentaries addressing conceptual, theoretical, methodological, and ethical issues pertaining to qualitative enquiry.
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