重病期间支持性护理需求的预测因素:对保留地非正规护理人员的横断面分析。

IF 1.2 4区 医学 Q3 NURSING Journal of Hospice & Palliative Nursing Pub Date : 2024-10-01 Epub Date: 2024-08-05 DOI:10.1097/NJH.0000000000001050
Katie E Nelson, Kassie Runsabove, Martha Abshire Saylor, Kathleen Adams, Patricia M Davidson, Nancy Perrin, Alicia Werk, Rebecca Wright, Teresa N Brockie
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引用次数: 0

摘要

在美国,美国原住民(土著美国人)患重病的比例很高。在资源匮乏的环境中,照顾病人主要依靠非正规护理人员。对居住在保留地的护理人员的需求报道严重不足。因此,我们的目标是研究一个保留地社区中的成年非正规护理者的支持性护理需求的促进因素(社区主人翁精神、文化认同和灵性)和障碍因素(抑郁、焦虑、压力和负担)之间的关系。我们于 2022 年 7 月和 8 月发放了一份横断面调查问卷,这是一项规模更大、采用多种方法、以社区为基础的参与式研究的一部分。我们使用了描述性统计和线性回归模型来检验与主要结果--"原住民支持性护理需求评估工具"--之间的关系。研究共纳入了 127 名参与者,其中大多数为女性(92 人,占 72.4%),年龄在 30 至 49 岁之间(57 人,占 44.9%),有 6 个月或更短的护理经验(41 人,占 32.5%)。较高的抑郁、焦虑、压力和负担与较高的原住民支持性护理需求评估工具得分明显相关。总体而言,精神健康是一个重要障碍,可能表明非正规护理者需要更多的支持性护理,尽管还需要进一步的工作来从文化角度区分症状及其对护理的影响。
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Predictors of Supportive Care Needs During Serious Illness: Cross-sectional Analysis of Reservation-Based Informal Caregivers.

Native Americans (Indigenous Americans) have high rates of serious illness in the United States. Informal caregivers are heavily relied on in caring for patients in low-resource settings. The needs of caregivers residing on reservations are sorely underreported. Therefore, our objective was to examine relationships between facilitators (communal mastery, cultural identity, and spirituality) and barriers (depression, anxiety, stress, and burden) with supportive care needs among adult informal caregivers in 1 reservation-based community. A cross-sectional survey was distributed in July and August 2022 as part of a larger multimethod, community-based participatory research study. We used descriptive statistics and linear regression models to examine relationships against the primary outcome, the Supportive Care Needs Assessment Tool for Indigenous People. Overall, 127 participants were included; most were female (n = 92, 72.4%), were between 30 and 49 years (n = 57, 44.9%), and had 6 months or less of caregiving experience (n = 41, 32.5%). Higher depression, anxiety, stress, and burden were significantly associated with higher Supportive Care Needs Assessment Tool for Indigenous People scores. Overall, mental health is a significant barrier that may indicate greater supportive care needs among informal caregivers, although further work is needed to differentiate symptoms and their impact on caregiving from a cultural perspective.

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来源期刊
CiteScore
2.60
自引率
11.10%
发文量
203
审稿时长
6-12 weeks
期刊介绍: Journal of Hospice & Palliative Nursing (JHPN) is the official journal of the Hospice & Palliative Nurses Association and is the professional, peer-reviewed journal for nurses in hospice and palliative care settings. Focusing on the clinical, educational and research aspects of care, JHPN offers current and reliable information on end of life nursing. Feature articles in areas such as symptom management, ethics, and futility of care address holistic care across the continuum. Book and article reviews, clinical updates and case studies create a journal that meets the didactic and practical needs of the nurse caring for patients with serious illnesses in advanced stages.
期刊最新文献
Pragmatic Trial of Palliative Care Support Using Extension for Community Healthcare Outcomes Mentoring. On Uncertainty. Substance Use Disorder, Opioid Use Disorder, and Symptom Management in Palliative Care: A Rapid Review of Evidence. "We Wanna Be Nurses Because We Want the Human Connection": Acceptability and Usability of a Person-Centered Narrative Intervention in an Acute Care Setting. "I Finally Feel Like I Have Help. Before, I Was Completely Alone": A Grounded Theory of Community-Based Hospice Transitions.
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