{"title":"创伤性脑损伤后男性和女性融入社区的挑战:通过性别视角对生活经历进行反思性专题分析。","authors":"Lulu Lian, Rachael Coupland, Thaisa Tylinski Sant'Ana, Angela Colantonio, Tatyana Mollayeva","doi":"10.1097/HTR.0000000000000994","DOIUrl":null,"url":null,"abstract":"<p><strong>Objective: </strong>To investigate community integration (CI) challenges following traumatic brain injury (TBI) through a gender lens.</p><p><strong>Setting: </strong>Rehabilitation research-teaching hospital.</p><p><strong>Participants: </strong>Adult participants (22 men and 20 women) with a primary diagnosis of mild or moderate-severe TBI, in the acute or chronic stages after injury, were recruited using purposive sampling.</p><p><strong>Design: </strong>Qualitative study. Data were collected through semistructured interviews, and thematic analysis was used to identify themes of CI challenges.</p><p><strong>Results: </strong>Three overarching themes emerged: (1) lack of a \"graduated home plan\": difficulty enacting gendered roles and responsibilities at home, (2) \"Something that I cannot handle\": mismatch between occupational demands and abilities, and (3) \"Slipping away\": disrupted connections with self and others. Men consistently voiced struggles with and inability to fulfill household tasks, whereas women detailed ways of adapting domestic responsibilities because of postinjury limitations. Productivity challenges resonated with a substantial number of participants, and a gendered pattern was observed: More women reported an inability, whereas more men reported a limited ability to meet occupational demands. Both genders conveyed disruptions in recreational and leisure activities, although women predominantly discussed challenges relating to social activities and men a tendency to avoid social situations because of anticipated stigma and/or shame. Across all themes, a pervasive sense of diminished community contributions and disrupted identities was observed.</p><p><strong>Conclusion: </strong>The incongruence between preinjury roles and responsibilities and postinjury abilities resulted in difficulties across multiple CI domains for the study participants and did not go unnoticed by them. It is important for health care professionals to assist patients in addressing gendered challenges at home, work, and in the social circle for a smoother transition back into the community.</p>","PeriodicalId":15901,"journal":{"name":"Journal of Head Trauma Rehabilitation","volume":" ","pages":""},"PeriodicalIF":2.4000,"publicationDate":"2024-08-08","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Community Integration Challenges of Men and Women After Traumatic Brain Injury: A Reflexive Thematic Analysis of Lived Experiences Through a Gender Lens.\",\"authors\":\"Lulu Lian, Rachael Coupland, Thaisa Tylinski Sant'Ana, Angela Colantonio, Tatyana Mollayeva\",\"doi\":\"10.1097/HTR.0000000000000994\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Objective: </strong>To investigate community integration (CI) challenges following traumatic brain injury (TBI) through a gender lens.</p><p><strong>Setting: </strong>Rehabilitation research-teaching hospital.</p><p><strong>Participants: </strong>Adult participants (22 men and 20 women) with a primary diagnosis of mild or moderate-severe TBI, in the acute or chronic stages after injury, were recruited using purposive sampling.</p><p><strong>Design: </strong>Qualitative study. Data were collected through semistructured interviews, and thematic analysis was used to identify themes of CI challenges.</p><p><strong>Results: </strong>Three overarching themes emerged: (1) lack of a \\\"graduated home plan\\\": difficulty enacting gendered roles and responsibilities at home, (2) \\\"Something that I cannot handle\\\": mismatch between occupational demands and abilities, and (3) \\\"Slipping away\\\": disrupted connections with self and others. Men consistently voiced struggles with and inability to fulfill household tasks, whereas women detailed ways of adapting domestic responsibilities because of postinjury limitations. Productivity challenges resonated with a substantial number of participants, and a gendered pattern was observed: More women reported an inability, whereas more men reported a limited ability to meet occupational demands. Both genders conveyed disruptions in recreational and leisure activities, although women predominantly discussed challenges relating to social activities and men a tendency to avoid social situations because of anticipated stigma and/or shame. Across all themes, a pervasive sense of diminished community contributions and disrupted identities was observed.</p><p><strong>Conclusion: </strong>The incongruence between preinjury roles and responsibilities and postinjury abilities resulted in difficulties across multiple CI domains for the study participants and did not go unnoticed by them. It is important for health care professionals to assist patients in addressing gendered challenges at home, work, and in the social circle for a smoother transition back into the community.</p>\",\"PeriodicalId\":15901,\"journal\":{\"name\":\"Journal of Head Trauma Rehabilitation\",\"volume\":\" \",\"pages\":\"\"},\"PeriodicalIF\":2.4000,\"publicationDate\":\"2024-08-08\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Journal of Head Trauma Rehabilitation\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1097/HTR.0000000000000994\",\"RegionNum\":3,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"CLINICAL NEUROLOGY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Journal of Head Trauma Rehabilitation","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1097/HTR.0000000000000994","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"CLINICAL NEUROLOGY","Score":null,"Total":0}
引用次数: 0
摘要
目的: 通过性别视角调查创伤性脑损伤(TBI)后融入社区(CI)的挑战:通过性别视角调查创伤性脑损伤(TBI)后社区融合(CI)面临的挑战:康复研究教学医院:通过有目的的抽样,招募主要诊断为轻度或中度严重创伤性脑损伤、处于伤后急性或慢性阶段的成年参与者(22 名男性和 20 名女性):设计:定性研究。通过半结构式访谈收集数据,并采用主题分析法确定 CI 挑战的主题:出现了三个首要主题:(1) 缺乏 "分级家庭计划":难以在家中扮演性别角色和承担责任;(2) "我无法处理的事情":职业要求与能力不匹配;(3) "悄然离去":与自己和他人的联系中断。男性一致表达了在家务方面的挣扎和无能为力,而女性则详细介绍了由于伤后限制而调整家务责任的方法。生产力方面的挑战引起了相当多参与者的共鸣,并且观察到了一种性别模式:更多女性表示无法满足职业要求,而更多男性则表示能力有限。两种性别都表达了对娱乐和休闲活动的干扰,但女性主要讨论的是与社交活动有关的挑战,而男性则倾向于避免社交场合,因为预期的耻辱和/或羞耻感。在所有主题中,我们都观察到一种普遍的感觉,即对社区的贡献减少了,身份被破坏了:结论:受伤前的角色和责任与受伤后的能力之间的不一致导致了研究参与者在多个 CI 领域遇到困难,而他们并没有忽视这一点。医护人员有必要帮助患者解决在家庭、工作和社交圈中遇到的性别挑战,以便他们更顺利地重返社区。
Community Integration Challenges of Men and Women After Traumatic Brain Injury: A Reflexive Thematic Analysis of Lived Experiences Through a Gender Lens.
Objective: To investigate community integration (CI) challenges following traumatic brain injury (TBI) through a gender lens.
Participants: Adult participants (22 men and 20 women) with a primary diagnosis of mild or moderate-severe TBI, in the acute or chronic stages after injury, were recruited using purposive sampling.
Design: Qualitative study. Data were collected through semistructured interviews, and thematic analysis was used to identify themes of CI challenges.
Results: Three overarching themes emerged: (1) lack of a "graduated home plan": difficulty enacting gendered roles and responsibilities at home, (2) "Something that I cannot handle": mismatch between occupational demands and abilities, and (3) "Slipping away": disrupted connections with self and others. Men consistently voiced struggles with and inability to fulfill household tasks, whereas women detailed ways of adapting domestic responsibilities because of postinjury limitations. Productivity challenges resonated with a substantial number of participants, and a gendered pattern was observed: More women reported an inability, whereas more men reported a limited ability to meet occupational demands. Both genders conveyed disruptions in recreational and leisure activities, although women predominantly discussed challenges relating to social activities and men a tendency to avoid social situations because of anticipated stigma and/or shame. Across all themes, a pervasive sense of diminished community contributions and disrupted identities was observed.
Conclusion: The incongruence between preinjury roles and responsibilities and postinjury abilities resulted in difficulties across multiple CI domains for the study participants and did not go unnoticed by them. It is important for health care professionals to assist patients in addressing gendered challenges at home, work, and in the social circle for a smoother transition back into the community.
期刊介绍:
The Journal of Head Trauma Rehabilitation is a leading, peer-reviewed resource that provides up-to-date information on the clinical management and rehabilitation of persons with traumatic brain injuries. Six issues each year aspire to the vision of “knowledge informing care” and include a wide range of articles, topical issues, commentaries and special features. It is the official journal of the Brain Injury Association of America (BIAA).