{"title":"为严重神经损伤儿童提供护理的临床医生的社会心理体验。","authors":"","doi":"10.1111/dmcn.16061","DOIUrl":null,"url":null,"abstract":"<p>The clinical care for children with severe neurological impairment (SNI) has undergone major advances, and services have adapted with the promise of many potential new treatments on the horizon. Children with SNI are living longer and patients with complex needs have outpaced the number of clinicians trained to adequately provide care.</p><p>This growing gap and the limited supports places added pressure on clinicians. They struggle with uncertainty and feel ill-equipped to provide appropriate management and counselling for children with rare and complex SNI.</p><p>This research study asked clinicians about their experiences caring for children with SNI. We also asked clinicians what could be developed to better support them in their role.</p><p>We conducted 24 interviews with clinicians. We asked clinicians to tell us about their experiences caring for children with SNI and how their experiences impacted their mental, physical, and social–emotional wellbeing over time.</p><p>Clinicians described a combination of physical, emotional, and mental health impacts. Stressors were related to inadequate training and support for patients with SNI. This often caused clinicians to experience isolation, anxiety, and self-doubt and a sense of powerlessness. Many clinicians were able to make use of strategies to help them cope with complex challenges including creating meaningful connections with families and their clinical teams. Learning to approach scenarios with greater acceptance of the limitations of their medical knowledge and capacity to change the situation was associated with increased clinician wellbeing.</p>","PeriodicalId":50587,"journal":{"name":"Developmental Medicine and Child Neurology","volume":null,"pages":null},"PeriodicalIF":3.8000,"publicationDate":"2024-08-07","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://onlinelibrary.wiley.com/doi/epdf/10.1111/dmcn.16061","citationCount":"0","resultStr":"{\"title\":\"Psychosocial experiences of clinicians providing care for children with severe neurological impairment\",\"authors\":\"\",\"doi\":\"10.1111/dmcn.16061\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p>The clinical care for children with severe neurological impairment (SNI) has undergone major advances, and services have adapted with the promise of many potential new treatments on the horizon. Children with SNI are living longer and patients with complex needs have outpaced the number of clinicians trained to adequately provide care.</p><p>This growing gap and the limited supports places added pressure on clinicians. They struggle with uncertainty and feel ill-equipped to provide appropriate management and counselling for children with rare and complex SNI.</p><p>This research study asked clinicians about their experiences caring for children with SNI. We also asked clinicians what could be developed to better support them in their role.</p><p>We conducted 24 interviews with clinicians. We asked clinicians to tell us about their experiences caring for children with SNI and how their experiences impacted their mental, physical, and social–emotional wellbeing over time.</p><p>Clinicians described a combination of physical, emotional, and mental health impacts. Stressors were related to inadequate training and support for patients with SNI. This often caused clinicians to experience isolation, anxiety, and self-doubt and a sense of powerlessness. Many clinicians were able to make use of strategies to help them cope with complex challenges including creating meaningful connections with families and their clinical teams. Learning to approach scenarios with greater acceptance of the limitations of their medical knowledge and capacity to change the situation was associated with increased clinician wellbeing.</p>\",\"PeriodicalId\":50587,\"journal\":{\"name\":\"Developmental Medicine and Child Neurology\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":3.8000,\"publicationDate\":\"2024-08-07\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"https://onlinelibrary.wiley.com/doi/epdf/10.1111/dmcn.16061\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Developmental Medicine and Child Neurology\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://onlinelibrary.wiley.com/doi/10.1111/dmcn.16061\",\"RegionNum\":2,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q1\",\"JCRName\":\"CLINICAL NEUROLOGY\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Developmental Medicine and Child Neurology","FirstCategoryId":"3","ListUrlMain":"https://onlinelibrary.wiley.com/doi/10.1111/dmcn.16061","RegionNum":2,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q1","JCRName":"CLINICAL NEUROLOGY","Score":null,"Total":0}
Psychosocial experiences of clinicians providing care for children with severe neurological impairment
The clinical care for children with severe neurological impairment (SNI) has undergone major advances, and services have adapted with the promise of many potential new treatments on the horizon. Children with SNI are living longer and patients with complex needs have outpaced the number of clinicians trained to adequately provide care.
This growing gap and the limited supports places added pressure on clinicians. They struggle with uncertainty and feel ill-equipped to provide appropriate management and counselling for children with rare and complex SNI.
This research study asked clinicians about their experiences caring for children with SNI. We also asked clinicians what could be developed to better support them in their role.
We conducted 24 interviews with clinicians. We asked clinicians to tell us about their experiences caring for children with SNI and how their experiences impacted their mental, physical, and social–emotional wellbeing over time.
Clinicians described a combination of physical, emotional, and mental health impacts. Stressors were related to inadequate training and support for patients with SNI. This often caused clinicians to experience isolation, anxiety, and self-doubt and a sense of powerlessness. Many clinicians were able to make use of strategies to help them cope with complex challenges including creating meaningful connections with families and their clinical teams. Learning to approach scenarios with greater acceptance of the limitations of their medical knowledge and capacity to change the situation was associated with increased clinician wellbeing.
期刊介绍:
Wiley-Blackwell is pleased to publish Developmental Medicine & Child Neurology (DMCN), a Mac Keith Press publication and official journal of the American Academy for Cerebral Palsy and Developmental Medicine (AACPDM) and the British Paediatric Neurology Association (BPNA).
For over 50 years, DMCN has defined the field of paediatric neurology and neurodisability and is one of the world’s leading journals in the whole field of paediatrics. DMCN disseminates a range of information worldwide to improve the lives of disabled children and their families. The high quality of published articles is maintained by expert review, including independent statistical assessment, before acceptance.