儿童和青少年在使用医疗技术自我管理长期疾病时的偏好和需求:范围界定综述。

IF 4.3 3区 医学 Q1 PEDIATRICS Archives of Disease in Childhood Pub Date : 2024-09-25 DOI:10.1136/archdischild-2023-326044
Rosemary Jane Court, Veronica Swallow, Sarab El-Yousfi, Kara Gray-Burrows, Fiona Sotir, Gemma Wheeler, Ian Kellar, Jia Mang Lee, Robyn Mitchell, Wiktoria Mlynarczyk, Arnav Ramavath, Paul Dimitri, Bob Phillips, Lucy Prodgers, Madeleine Pownall, Marcin Kowalczyk, Jacob Branchflower, Lauren Powell, Sadiq Bhanbhro, Anna Weighall, Jacqueline Martin-Kerry
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引用次数: 0

摘要

背景:使用面向患者的健康技术来管理长期病症(LTCs)的情况越来越多;然而,儿童和青少年(CYP)可能对他们互动或参与的健康技术有偏好,从而影响他们使用这些技术的决定:我们在 2021 年 7 月对 MEDLINE、PsycINFO 和 CINAHL 进行了范围界定审查。检索仅限于 2015 年 1 月至 2021 年 7 月间发表的论文。我们纳入了任何用于管理身体和精神长期慢性病的医疗技术。我们对研究数据进行了定性内容分析,将数据归类为主题,并对定量数据进行了描述和直观表示。我们让患有 LTC 的儿童参与其中,以支持综述的设计、研究结果的解释和建议的制定:结果:共收录了 161 篇期刊文章,这些文章描述了 CYP 的偏好。大多数纳入的研究都是在高收入国家进行的。CYP 的主要偏好和需求包括:设计和功能;隐私和共享;技术的定制和个性化;以及技术中的交互选项:本综述强调了青少年在使用技术自我管理其长期护理之前可能会有的重要偏好和需求。在为这一群体开发技术时,应考虑到这些因素。未来的研究应让儿童青少年参与整个技术开发过程,从确定他们未满足的需求到最终设计、开发、评估和实施干预措施。
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Children and young people's preferences and needs when using health technology to self-manage a long-term condition: a scoping review.

Background: The use of patient-facing health technologies to manage long-term conditions (LTCs) is increasing; however, children and young people (CYP) may have preferences about health technologies which they interact or engage with, that influence their decision to use these technologies.

Aims: To identify CYP's reported preferences about health technologies to self-manage LTCs.

Methods: We undertook a scoping review, searching MEDLINE, PsycINFO and CINAHL in July 2021. Searches were limited to papers published between January 2015 and July 2021. We included any health technologies used to manage physical and mental LTCs. Qualitative content analysis of study data was undertaken to categorise data into themes and quantitative data were described and visually represented. We engaged CYP with LTCs to support the review design, interpretation of findings and development of recommendations.

Results: 161 journal articles were included, describing preferences of CYP. Most included studies were undertaken in high-income countries. CYP's main preferences and needs were: design and functionality; privacy and sharing; customisation and personalisation of the technology; and interaction options within the technology.

Conclusions: This review highlights important preferences and needs that CYP may have before using technologies to self-manage their LTC. These should be considered when developing technology for this population. Future research should involve CYP throughout the development of the technologies, from identifying their unmet needs through to final design, development, evaluation and implementation of the intervention.

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来源期刊
CiteScore
5.80
自引率
3.80%
发文量
291
审稿时长
3-6 weeks
期刊介绍: Archives of Disease in Childhood is an international peer review journal that aims to keep paediatricians and others up to date with advances in the diagnosis and treatment of childhood diseases as well as advocacy issues such as child protection. It focuses on all aspects of child health and disease from the perinatal period (in the Fetal and Neonatal edition) through to adolescence. ADC includes original research reports, commentaries, reviews of clinical and policy issues, and evidence reports. Areas covered include: community child health, public health, epidemiology, acute paediatrics, advocacy, and ethics.
期刊最新文献
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