超越生物学的健康:扩展健康假设与技术。

IF 1.6 Q2 ETHICS Monash Bioethics Review Pub Date : 2024-08-14 DOI:10.1007/s40592-024-00206-1
Maja Baretić, David de Bruijn
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引用次数: 0

摘要

临床医生在应对使用未注册医疗设备(如用于管理 1 型糖尿病的创新互联网技术)时面临着伦理困境。这种慢性疾病严重影响患者的健康,需要进行密集的日常活动,如血糖监测、注射胰岛素和特定的饮食建议。最近的技术进步,包括连续血糖监测仪和胰岛素泵,已被证明可以改善血糖控制。Di-it Yourself 人工胰腺系统是由糖尿病社区发起的新兴开源自动给药方法,但尚未经过临床评估,对医疗服务提供者来说是一项责任挑战。用还是不用?家长和医疗服务提供者是否应该使用这种有帮助但未经证实的技术?考虑到这一切,我们认为世界卫生组织(WHO)对健康的定义已经过时,并倡导 "扩展健康假说"。这一假说认为,健康超越了传统的生物学界限,包括了糖尿病相关技术等基本功能结构,使技术成为患者健康的一部分。这一观点与 "扩展心智假说 "相一致,即如果健康元素对患者的功能至关重要,则应包括有机物质以外的元素。在评论中,我们强调自然主义和规范主义的健康概念都支持扩展健康假说,强调人类健康并不局限于有机物质。这一观点提出了一些关键问题:胰岛素泵和连续血糖监测仪等设备是否与患者的健康密不可分,它们的故障是否构成一种疾病。如果设备被认为是健康不可或缺的组成部分,那么使用未经注册的医疗设备来管理 1 型糖尿病就不存在伦理困境。最后,我们呼吁重新评估健康和患者的定义,尤其是使用先进技术的 1 型糖尿病患儿。该报告认为,优化使用这些设备代表了一种新的健康形式,创造了一种健康与设备的共生关系,在评估时应考虑到儿童的最佳利益。
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Health beyond biology: the extended health hypothesis and technology.

There are ethical dilemmas faced by clinicians when responding to using unregistered medical devices, such as innovative internet technologies for managing type 1 diabetes mellitus. This chronic disease significantly impacts patients' health, requiring intensive daily activities like blood glucose monitoring, insulin injections, and specific dietary recommendations. Recent technological advances, including continuous glucose monitors and insulin pumps, have been shown to improve glycemic control. Di-it Yourself Artificial Pancreas Systems are emerging open-source automated delivery methods initiated by the diabetes community, although they are not clinically evaluated and present a liability challenge for healthcare providers. To use them or not? Should parents and healthcare providers use such technology that helps, but is not proven?Having all of that in mind, we argue that the World Health Organization's (WHO) definition of health is outdated, advocating for the "Extended Health Hypothesis". This hypothesis claims that health extends beyond traditional biological boundaries to include essential functional structures like diabetes-related technology, making technology a part of a patient's health. This view aligns with the "Extended Mind Hypothesis," suggesting that health should include elements beyond organic material if they are vital to a patient's functions.In the commentary, we highlight that both naturalist and normative conceptions of health support the extended health hypothesis, emphasizing that human health is not confined to organic material. This perspective raises critical questions about whether devices like insulin pumps and continuous glucose monitors are integral to a patient's health and whether their malfunction constitutes a form of disease. Devices are considered integral to health, there is no ethical dilemma in using unregistered medical devices for managing type 1 diabetes. Finally, we call for reevaluating the definitions of health and patients, particularly for children with type 1 diabetes using advanced technologies. It asserts that the optimal use of such devices represents a new form of health, creating a health-device symbiosis that should be evaluated with the child's best interests in mind.

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来源期刊
CiteScore
2.70
自引率
6.20%
发文量
16
期刊介绍: Monash Bioethics Review provides comprehensive coverage of traditional topics and emerging issues in bioethics. The Journal is especially concerned with empirically-informed philosophical bioethical analysis with policy relevance. Monash Bioethics Review also regularly publishes empirical studies providing explicit ethical analysis and/or with significant ethical or policy implications. Produced by the Monash University Centre for Human Bioethics since 1981 (originally as Bioethics News), Monash Bioethics Review is the oldest peer reviewed bioethics journal based in Australia–and one of the oldest bioethics journals in the world. An international forum for empirically-informed philosophical bioethical analysis with policy relevance. Includes empirical studies providing explicit ethical analysis and/or with significant ethical or policy implications. One of the oldest bioethics journals, produced by a world-leading bioethics centre. Publishes papers up to 13,000 words in length. Unique New Feature: All Articles Open for Commentary
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