为患有 SMI 的成年人的照顾者调整家长连接计划:家庭连接经验。

Paige E. Cervantes, Charlotte Gendler, Lori Markowitz, Meggin Rose, Priscilla Shorter, Sally Mason, Tanya Hernandez, Kimberly E. Hoagwood
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摘要

在患有严重精神疾病(SMI)的成年亲人的康复过程中,照顾者扮演着至关重要的角色。提高照顾者的能力和幸福感至关重要,但却常常被忽视。家庭同伴干预非常适合满足这一需求;然而,支持对患有严重精神疾病(SMI)的成年患者的照顾者使用家庭同伴干预的研究却很有限。我们的团队目前正在进行一项研究,评估基于实证的 "父母联系者 "项目1,2 的改编版(更名为 "家庭联系者"(FC)),该项目针对的是最近从纽约 "首发精神病 "项目(OnTrackNY)出院的年轻成年人的照顾者。本文是我们与家庭同伴专业人士合作撰写的,描述了我们在向这一新人群提供 FC 项目一年后,为系统记录家庭同伴专业人士的经验而遵循的调整过程。为提高干预的适应性而进行的修改包括:调整干预内容、在计划中加入外部方法、在某些情况下延长服务时间,以及增加每周一次的同伴督导会议。我们希望这些见解能为今后的工作提供参考,以推进对患有 SMI 的亲人的支持,更广泛地说,希望我们的方法能成为有效合作的典范,以改善针对特殊群体的同伴支持服务的应用。
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Adapting the Parent Connector program for caregivers of adults with SMI: the Family Connector experience
Caregivers play an essential role in the recovery of their adult loved ones with serious mental illness (SMI). Promoting caregiver empowerment and well-being is critical but has often been overlooked. Family peer interventions are well-suited to fill this need; however, research is limited supporting their use with caregivers of adults with SMI. Our team is currently engaged in a study evaluating an adapted version of the evidenced-based Parent Connectors program1,2, renamed Family Connectors (FC), for caregivers of young adults recently discharged from the First Episode Psychosis program in New York (OnTrackNY). This paper, written collaboratively with family peer professionals, describes the adaptation process we followed to systematically document the family peer professional experience one year into delivering the FC program to this novel population. Modifications made to improve intervention fit included tailoring the content of the intervention, incorporating an outside approach into the program, lengthening the service in some cases, and adding a weekly peer supervision meeting. We hope that these insights are used to inform future efforts to advance support for families of loved ones with SMI, and more broadly, that our approach serves as a model for effective collaboration to improve the application of peer support services for unique groups.
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