{"title":"根据患有顽固性泄殖腔的妇女的叙述，对她们的生活进行定性归纳分析。","authors":"Junko Miyata, Yuko Hamada, Satomi Hayashishita, Ayaka Fujita, Tomoko Izaki, Satoshi Obata, Takuya Kondo, Atsuhisa Fukuta, Naonori Kawakubo, Kouji Nagata, Akihiko Tamaki, Junnosuke Maniwa, Yoshiaki Takahashi, Toshiharu Matsuura, Tomoaki Taguchi, Tatsuro Tajiri","doi":"10.1007/s00383-024-05807-9","DOIUrl":null,"url":null,"abstract":"<p><strong>Purpose: </strong>The study aimed to explore and describe the lives of patients with persistent cloaca (PC) from childhood to adulthood.</p><p><strong>Methods: </strong>Semistructured interviews were conducted with nine adult patients with PC. Their experiences and thoughts regarding this disease were analyzed qualitatively and inductively.</p><p><strong>Results: </strong>After classifying the experiences and thoughts of patients with PC, 13 categories were extracted. The following five themes emerged from these categories. (1) Difficulties with excretion and vaginal management because of the disease. (2) The degree of understanding of those around them and society has a huge effect on their way of life. (3) The inferiority of a woman who is not a \"normal woman.\" (4) A \"never-ending disease\" in which problems continue even after the transition period. (5) Differences in the central point of the narrative depending on the age group.</p><p><strong>Conclusions: </strong>In this study, qualitative and inductive analyses of data from semistructured interviews with patients with PC revealed their experiences and thoughts. The results will provide a guide for young patients and the medical professionals who treat them. Accordingly, monitoring their lives until adulthood is necessary.</p>","PeriodicalId":19832,"journal":{"name":"Pediatric Surgery International","volume":null,"pages":null},"PeriodicalIF":1.5000,"publicationDate":"2024-08-20","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"","citationCount":"0","resultStr":"{\"title\":\"Qualitative inductive analysis of the lives of women with persistent cloaca based on their narratives.\",\"authors\":\"Junko Miyata, Yuko Hamada, Satomi Hayashishita, Ayaka Fujita, Tomoko Izaki, Satoshi Obata, Takuya Kondo, Atsuhisa Fukuta, Naonori Kawakubo, Kouji Nagata, Akihiko Tamaki, Junnosuke Maniwa, Yoshiaki Takahashi, Toshiharu Matsuura, Tomoaki Taguchi, Tatsuro Tajiri\",\"doi\":\"10.1007/s00383-024-05807-9\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Purpose: </strong>The study aimed to explore and describe the lives of patients with persistent cloaca (PC) from childhood to adulthood.</p><p><strong>Methods: </strong>Semistructured interviews were conducted with nine adult patients with PC. Their experiences and thoughts regarding this disease were analyzed qualitatively and inductively.</p><p><strong>Results: </strong>After classifying the experiences and thoughts of patients with PC, 13 categories were extracted. The following five themes emerged from these categories. (1) Difficulties with excretion and vaginal management because of the disease. (2) The degree of understanding of those around them and society has a huge effect on their way of life. (3) The inferiority of a woman who is not a \\\"normal woman.\\\" (4) A \\\"never-ending disease\\\" in which problems continue even after the transition period. (5) Differences in the central point of the narrative depending on the age group.</p><p><strong>Conclusions: </strong>In this study, qualitative and inductive analyses of data from semistructured interviews with patients with PC revealed their experiences and thoughts. The results will provide a guide for young patients and the medical professionals who treat them. Accordingly, monitoring their lives until adulthood is necessary.</p>\",\"PeriodicalId\":19832,\"journal\":{\"name\":\"Pediatric Surgery International\",\"volume\":null,\"pages\":null},\"PeriodicalIF\":1.5000,\"publicationDate\":\"2024-08-20\",\"publicationTypes\":\"Journal Article\",\"fieldsOfStudy\":null,\"isOpenAccess\":false,\"openAccessPdf\":\"\",\"citationCount\":\"0\",\"resultStr\":null,\"platform\":\"Semanticscholar\",\"paperid\":null,\"PeriodicalName\":\"Pediatric Surgery International\",\"FirstCategoryId\":\"3\",\"ListUrlMain\":\"https://doi.org/10.1007/s00383-024-05807-9\",\"RegionNum\":3,\"RegionCategory\":\"医学\",\"ArticlePicture\":[],\"TitleCN\":null,\"AbstractTextCN\":null,\"PMCID\":null,\"EPubDate\":\"\",\"PubModel\":\"\",\"JCR\":\"Q2\",\"JCRName\":\"PEDIATRICS\",\"Score\":null,\"Total\":0}","platform":"Semanticscholar","paperid":null,"PeriodicalName":"Pediatric Surgery International","FirstCategoryId":"3","ListUrlMain":"https://doi.org/10.1007/s00383-024-05807-9","RegionNum":3,"RegionCategory":"医学","ArticlePicture":[],"TitleCN":null,"AbstractTextCN":null,"PMCID":null,"EPubDate":"","PubModel":"","JCR":"Q2","JCRName":"PEDIATRICS","Score":null,"Total":0}
引用次数: 0
摘要
目的：本研究旨在探讨和描述持续性泄殖腔炎（PC）患者从童年到成年的生活：方法：对九名成年PC患者进行了半结构式访谈。方法：对九名成年泄殖腔炎患者进行了半结构式访谈，以定性和归纳的方式分析了他们的经历和对该疾病的看法：结果：对 PC 患者的经历和想法进行分类后，提取出 13 个类别。从这些类别中产生了以下五个主题。(1) 由于该疾病，患者在排泄和阴道管理方面遇到困难。(2) 周围人和社会的理解程度对他们的生活方式有很大影响。(3) 非 "正常女性 "的自卑感。(4) 一种 "不治之症"，即使过了过渡期，问题依然存在。(5) 不同年龄段的叙述中心点不同：本研究通过对 PC 患者的半结构式访谈数据进行定性和归纳分析，揭示了他们的经历和想法。研究结果将为年轻患者和治疗他们的医务人员提供指导。因此，有必要对他们成年前的生活进行监测。
Qualitative inductive analysis of the lives of women with persistent cloaca based on their narratives.
Purpose: The study aimed to explore and describe the lives of patients with persistent cloaca (PC) from childhood to adulthood.
Methods: Semistructured interviews were conducted with nine adult patients with PC. Their experiences and thoughts regarding this disease were analyzed qualitatively and inductively.
Results: After classifying the experiences and thoughts of patients with PC, 13 categories were extracted. The following five themes emerged from these categories. (1) Difficulties with excretion and vaginal management because of the disease. (2) The degree of understanding of those around them and society has a huge effect on their way of life. (3) The inferiority of a woman who is not a "normal woman." (4) A "never-ending disease" in which problems continue even after the transition period. (5) Differences in the central point of the narrative depending on the age group.
Conclusions: In this study, qualitative and inductive analyses of data from semistructured interviews with patients with PC revealed their experiences and thoughts. The results will provide a guide for young patients and the medical professionals who treat them. Accordingly, monitoring their lives until adulthood is necessary.
期刊介绍：
Pediatric Surgery International is a journal devoted to the publication of new and important information from the entire spectrum of pediatric surgery. The major purpose of the journal is to promote postgraduate training and further education in the surgery of infants and children.
The contents will include articles in clinical and experimental surgery, as well as related fields. One section of each issue is devoted to a special topic, with invited contributions from recognized authorities. Other sections will include:
-Review articles-
Original articles-
Technical innovations-
Letters to the editor
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