对成人皮肤病患者的影响、管理和现有心理支持的定性研究。

IF 3.5 4区 医学 Q1 DERMATOLOGY Acta dermato-venereologica Pub Date : 2024-08-23 DOI:10.2340/actadv.v104.40657
Rachael M Hewitt, Carys Dale, Catherine Purcell, Rachael Pattinson, Christine Bundy
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引用次数: 0

摘要

皮肤病会给患者带来巨大的生理、心理和社会负担。皮肤病患者经常会做出一些威胁健康的行为,这些行为会加重症状并增加心血管疾病的风险。然而,获得专门的心理和行为改变支持的机会却很有限。我们对成人皮肤病患者的影响、管理和现有的心理支持进行了定性探索,以便为心理支持性数字干预的开发提供信息。研究采用了归纳-演绎混合方法进行定性研究。数据收集和分析以自我调节的常识模型为理论依据。研究人员对 43 名患有各种皮肤病的英语成年人(≥ 18 岁)进行了 8 次同步在线小组访谈。采用反思性主题分析法对数据进行了分析。概述了三个首要主题:(i) 生命历程受损的可视性,(ii) 在不确定性中寻求控制,(iii) 对皮肤病患者的现有支持。皮肤病给患者带来了巨大的心理负担,但皮肤病治疗服务却不尽如人意,患者往往只能从不靠谱的渠道寻求支持。心理支持可以带来益处,但也存在障碍。这项研究强调了对高质量心理支持的需求,以及患者希望通过数字化手段来支持有效的自我管理。
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A Qualitative Exploration of the Impact, Management, and Existing Psychological Support Available for Adults Living with Skin Conditions.

Skin conditions carry a significant physical, psychological, and social burden. People with skin conditions often engage in health-threatening behaviours that can worsen symptoms and increase cardiovascular disease risk. However, access to dedicated psychological and behaviour-change support is limited. The impact, management, and existing psychological support available to adults living with skin conditions was qualitatively explored to inform the development of a psychologically supportive digital intervention. Qualitative research involving a hybrid inductive- deductive approach was performed. Data collection and analysis were theoretically informed by the Common-Sense Model of Self-Regulation. Eight synchronous online group interviews with 43 English-speaking adults (≥ 18 years) with a range of skin conditions were conducted. Data were analysed using Reflexive Thematic Analysis. Three superordinate themes are outlined: (i) visibility underpinning life course impairment, (ii) seeking control amid uncertainty, and (iii) existing support for people with skin conditions. Skin conditions carry a substantial psychological burden, yet dermatology service provision is sub-optimal and patients often resort to seeking support from unreliable sources. Psychological support can have benefits, but barriers exist. This study reinforces the need for high-quality psychological support, and that patients wanted digital means to support effective self- management.

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来源期刊
Acta dermato-venereologica
Acta dermato-venereologica 医学-皮肤病学
CiteScore
4.90
自引率
2.80%
发文量
210
审稿时长
6-12 weeks
期刊介绍: Acta Dermato-Venereologica publishes high-quality manuscripts in English in the field of Dermatology and Venereology, dealing with new observations on basic dermatological and venereological research, as well as clinical investigations. Each volume also features a number of Review articles in special areas, as well as short Letters to the Editor to stimulate debate and to disseminate important clinical observations. Acta Dermato-Venereologica has rapid publication times and is amply illustrated with a large number of colour photographs.
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