在多元文化社会中,以人为本的晚期痴呆症患者护理中未满足的需求与护理之间的道德联系。

IF 2.1 4区 医学 Q3 HEALTH CARE SCIENCES & SERVICES Journal of evaluation in clinical practice Pub Date : 2024-08-25 DOI:10.1111/jep.14095
Asmat Ara Islam
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引用次数: 0

摘要

理由晚期痴呆症患者由于决策能力减弱,会经历多方面的脆弱性。以人为本的护理(PCC)的主流版本强调患者的偏好和自主权,这往往有损于对他们未得到满足的独特需求的认可。从各种理论角度来看,确定个人自主的人格概念是否适用于晚期痴呆症患者在道德上是有问题的,并导致在护理这类患者时出现 "一刀切 "的问题:患者的文化背景不同,其预先指示的可用性也不同。本研究的目的是论证以关系自主为重点的临终关怀自主权(PCC)应成为护理晚期痴呆症患者的第一步:本研究在 PCC 框架内对伦理思考的包容性和多样性进行了批判性探索,并利用哲学论证评估了 PCC 关系自主概念的可行性:通过认真对待关系性,尤其是在多元文化社会中护理晚期痴呆症患者时,并通过从 PCC 的角度考虑未满足需求的道德联系,我们可以解决痴呆症护理中 "一刀切 "的问题。
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Moral nexus of unmet needs and care in person-centred care for patients with advanced dementia in a multicultural society.

Rationale: Patients with advanced dementia experience multifaceted vulnerabilities because of their diminished capacities for decision making. The dominant versions of person-centred care (PCC) emphasise patient preferences and autonomy, which often undermines a recognition of their distinct unfulfilled needs. Determining whether an individual autonomy conception of personhood applies to patients with advanced dementia is morally problematic from various theoretical perspectives and leads to the one-approach-fits-all problem when caring for this patient population.

Aims and objectives: The availability of patients' advanced directives varies depending on their cultural backgrounds. The goal of the study is to argue that PCC, with a focus on relational autonomy, should be the first step for caring for patients with advanced dementia.

Method: The study engages in a critical exploration of inclusivity and diversity in ethical thinking within a framework of PCC and uses philosophical argumentation to assess the viability of a relational autonomy conception of PCC.

Results and conclusion: By taking relationality seriously, especially in caring for patients with advanced dementia in a multicultural society, and by considering the moral nexus of unmet needs through the perspective of PCC, we can resolve the problem of one-approach-fits-all in dementia care.

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来源期刊
CiteScore
4.80
自引率
4.20%
发文量
143
审稿时长
3-8 weeks
期刊介绍: The Journal of Evaluation in Clinical Practice aims to promote the evaluation and development of clinical practice across medicine, nursing and the allied health professions. All aspects of health services research and public health policy analysis and debate are of interest to the Journal whether studied from a population-based or individual patient-centred perspective. Of particular interest to the Journal are submissions on all aspects of clinical effectiveness and efficiency including evidence-based medicine, clinical practice guidelines, clinical decision making, clinical services organisation, implementation and delivery, health economic evaluation, health process and outcome measurement and new or improved methods (conceptual and statistical) for systematic inquiry into clinical practice. Papers may take a classical quantitative or qualitative approach to investigation (or may utilise both techniques) or may take the form of learned essays, structured/systematic reviews and critiques.
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