消费者参与医疗服务研究:对澳大利亚一家公立医院和医疗服务机构工作人员的横断面调查。

Laura Ryan, Laetitia Hattingh, Joan Carlini, Kelly A Weir, Margaret Shapiro, Noela Baglot, Magnolia Cardona, Georgia Tobiano, Rachel Muir, Shelley Roberts, Sally Sargeant, Rachel Wenke
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引用次数: 0

摘要

目标消费者参与是指患者(他们的家人、朋友和护理人员)与研究人员合作开展研究项目。虽然人们期望医疗服务机构支持消费者与研究人员的合作,但仍需营造有利的环境,而有关澳大利亚医疗服务机构如何支持这种做法的研究却十分有限。本研究探讨了目前消费者参与研究活动的情况,以及澳大利亚一家三级医院和医疗服务机构的员工对消费者参与研究活动的看法。该调查评估了消费者参与研究的经验和信心、消费者参与的感知价值,以及与挑战、促进因素和解决方案相关的考虑因素,以加强消费者对医疗服务研究的参与。大约一半的受访者有让消费者参与研究的经验。超过 80% 的受访者认为消费者的参与提高了研究的相关性。已发现的障碍包括寻找(46.6%)和补偿(59.3%)消费者方面的挑战,以及研究人员技能和知识方面的不足(32.2%)和时间限制(39%)。促进因素包括获得经验丰富的研究人员和教育机会。此外,87%的受访者主张在医疗服务中增加对消费者参与的支持,92.5%的受访者认为任命一名指定的消费者参与官员是最有利的解决方案。结论虽然个人障碍会阻碍消费者参与研究,但更重要的制度因素(如资金和技术支持)可能会决定合作的成功和意义。随着医疗服务向研究中的共同设计模式发展,本研究的结果将为澳大利亚医疗服务中旨在加强消费者参与研究过程的举措提供指导。
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Consumer involvement in health service research: a cross-sectional survey of staff in an Australian public hospital and health service.

ObjectiveConsumer involvement is when patients (their families, friends, and caregivers) work with researchers on research projects. While health services are expected to support consumer-researcher collaborations, conducive environments still need to be developed, with limited research into how Australian health services support this practice. This study explores current consumer involvement in research activity and staff perceptions at an Australian tertiary hospital and health service.MethodsResearch-active employees at a health service were invited to participate in an online cross-sectional survey. It assessed experience with and confidence in involving consumers in research, the perceived value of consumer involvement, and considerations related to challenges, facilitators, and solutions to enhance consumer involvement in health service research.ResultsAmong 83 respondents, including medical, nursing, and allied health professionals, 54 completed the survey. Approximately half had experience with involving consumers in research. Over 80% recognised that involving consumers enhanced research relevance. Identified barriers included challenges in finding (46.6%) and compensating (59.3%) consumers, as well as deficiencies in researcher skills, knowledge (32.2%), and time constraints (39%). Facilitators comprised access to experienced researchers and educational opportunities. Moreover, 87% advocated for increased support to involve consumers within health services, with the appointment of a designated consumer involvement officer deemed the most beneficial solution by 92.5% of respondents.ConclusionsWhile individual barriers inhibit consumer involvement in research, more prominent institutional factors such as financial and technical support may determine successful and meaningful collaborations. As health services evolve towards co-design models in research, the outcomes of this study will guide initiatives aimed at enhancing consumer involvement in the research process within Australian health services.

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