解释文化因素对多发性硬化症疾病造成的负担:对多发性硬化症女性患者经历的定性研究。

IF 4.6 Q2 MATERIALS SCIENCE, BIOMATERIALS ACS Applied Bio Materials Pub Date : 2024-08-30 DOI:10.1186/s12905-024-03328-0
Fahimeh Pourhaji, Mousa Mahdizadeh Taraghdar, Nooshin Peyman, Jamshid Jamali, Hadi Tehrani
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引用次数: 0

摘要

背景介绍多发性硬化症(MS)是一种使人衰弱的非创伤性疾病,在年轻人中很常见。文化因素作为背景因素,会影响患者的适应能力和生活质量。本研究旨在解释文化因素对多发性硬化症造成的负担:本研究采用定性方法和传统内容分析法对马什哈德的多发性硬化症女性患者进行研究。数据是通过对患有多发性硬化症的妇女进行半结构化访谈收集的。通过有目的的抽样,选出了 15 名多发性硬化症患者。采用 Graneheim 和 Lundman 方法对收集到的数据进行分析。使用古巴和林肯标准对研究的可迁移性进行了评估。使用 MAXQADA 10 软件对数据进行管理和分析:在解释多发性硬化症患者的文化因素时,提取了一个类别(文化紧张关系)和五个子类别(被迫与配偶家庭沟通、妇女在社会中的角色定义、人们的行为、社会信仰和患者的孤立):研究结果表明,女性多发性硬化症患者面临着各种问题。要克服这些挑战,就必须改变社会上人们对女性多发性硬化症患者的态度,这对于制定切实可行的政策以创造合适的文化氛围非常重要。所采取的政策应旨在将改变社会对女性多发性硬化症患者看法的文化内化。因此,作者认为有必要制定文化政策,然后由执行这些政策的系统将本研究中提到的挑战视为多发性硬化症患者的优先事项。
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Explaining the burden of cultural factors on MS disease: a qualitative study of the experiences of women with multiple sclerosis.

Background: Multiple sclerosis (MS) is a debilitating, non-traumatic disease that is common among young adults. Cultural factors, as background factors, can affect how patients adapt and their quality of life. This study aimed to explain the burden of cultural factors on Multiple sclerosis.

Methods: This study was conducted with a qualitative approach and conventional content analysis among women with Multiple sclerosis in Mashhad. The data were collected through semi-structured interviews with women with MS. Fifteen patients with Multiple sclerosis were selected using purposeful sampling. The Graneheim and Lundman method was used to analyze the collected data. The transferability of the study was evaluated using the Guba and Lincoln criteria. MAXQADA 10 software was used to manage and analyze the data.

Results: In explanation of the cultural factors of patients with Multiple sclerosis, one category (cultural tensions) and five subcategories (forced communication with spouse's family, definition of women's role in society, people's behavior, social beliefs and isolation of the patient) were extracted.

Conclusion: The results obtained in this study show that female MS patients face various concerns. Overcoming these challenges require a change in the attitude of people in the society towards women with MS, which is important in the context of formulating practical policies to create a suitable culture. Adopted policies should aim to internalize the culture of changing society's views of female MS patients. Therefore, the authors argue that there is a need for cultural policies, followed by the systems implementing these policies to consider the challenges mentioned in this study as a priority for MS patients.

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来源期刊
ACS Applied Bio Materials
ACS Applied Bio Materials Chemistry-Chemistry (all)
CiteScore
9.40
自引率
2.10%
发文量
464
期刊最新文献
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