Paul Secombe, Emslie Lankin, Rosalind Beadle, Greg McAnulty, Alex Brown, Michael Bailey, Rebecca Schultz, David Pilcher
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A purposively sampled group of Aboriginal Liaison Officers working within the Alice Springs Hospital Intensive Care Unit (ASH ICU) participated in up to 6 focus groups during 2021 with subsequent thematic analysis of the enablers and barriers to Indigenous participation in the OD process. The ASH ICU is the only ICU servicing Central Australia, and 70% of admissions are Indigenous patients.</p><p><strong>Results: </strong>Four primary themes emerged: OD is a new and culturally taboo topic; conversations related to OD are confronting; education is needed (both about OD and cultural education for clinicians); and lack of trust in the healthcare system.</p><p><strong>Conclusions: </strong>There are cultural barriers to engaging in the OD process and clinicians need more training on the delivery of culturally safe communication is needed. Despite this, there was a recognition that OD is important. Education about OD needs to be place based, culturally and linguistically appropriate, informed by local knowledge, delivered in community, and occur before a family member is admitted to ICU.</p>","PeriodicalId":23225,"journal":{"name":"Transplantation Direct","volume":"10 9","pages":"e1692"},"PeriodicalIF":1.9000,"publicationDate":"2024-08-29","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11365648/pdf/","citationCount":"0","resultStr":"{\"title\":\"Aboriginal and Torres Strait Islander Attitudes to Organ Donation in Central Australia: A Qualitative Pilot Study.\",\"authors\":\"Paul Secombe, Emslie Lankin, Rosalind Beadle, Greg McAnulty, Alex Brown, Michael Bailey, Rebecca Schultz, David Pilcher\",\"doi\":\"10.1097/TXD.0000000000001692\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Background: </strong>Organ transplantation is a well-established intervention but is reliant on the donation of organs and tissues, mostly from deceased donors. 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引用次数: 0
摘要
背景:器官移植是一项成熟的干预措施,但有赖于器官和组织的捐赠,其中大部分来自已故捐赠者。澳大利亚人进行器官捐献(OD)的比例有所上升,但土著澳大利亚人进行器官捐献的比例仍然只有非土著澳大利亚人的三分之二。我们试图探索土著居民参与器官捐献过程的障碍和促进因素:方法:我们采用了以焦点小组为中心的定性方法,以了解土著居民在 OD 方面的经验和观点。2021 年期间,在爱丽斯泉医院重症监护室(ASH ICU)工作的原住民联络官有目的地参加了多达 6 个焦点小组,随后对原住民参与 OD 过程的促进因素和障碍进行了专题分析。艾尔泉医院重症监护室是澳大利亚中部地区唯一的重症监护室,70%的住院病人是土著人:出现了四个主要专题:OD是一个新的文化禁忌话题;与OD相关的对话令人感到不安;需要进行教育(包括关于OD的教育和对临床医生的文化教育);对医疗系统缺乏信任:结论:参与 OD 过程存在文化障碍,临床医生需要接受更多关于提供文化安全沟通的培训。尽管如此,人们还是认识到了开放式发展的重要性。有关定向行走的教育需要以地点为基础,在文化和语言上适当,以当地知识为依据,在社区进行,并在家庭成员入住重症监护病房之前进行。
Aboriginal and Torres Strait Islander Attitudes to Organ Donation in Central Australia: A Qualitative Pilot Study.
Background: Organ transplantation is a well-established intervention but is reliant on the donation of organs and tissues, mostly from deceased donors. The proportion of Australians proceeding to organ donation (OD) has increased, but the proportion of Indigenous Australians proceeding remains two-thirds that of non-Indigenous Australians. We sought to explore perceived barriers and enablers for the involvement of Indigenous peoples in the OD process.
Methods: Qualitative methodology centered around focus groups was used to capture the experiences and perspectives of Indigenous people regarding OD. A purposively sampled group of Aboriginal Liaison Officers working within the Alice Springs Hospital Intensive Care Unit (ASH ICU) participated in up to 6 focus groups during 2021 with subsequent thematic analysis of the enablers and barriers to Indigenous participation in the OD process. The ASH ICU is the only ICU servicing Central Australia, and 70% of admissions are Indigenous patients.
Results: Four primary themes emerged: OD is a new and culturally taboo topic; conversations related to OD are confronting; education is needed (both about OD and cultural education for clinicians); and lack of trust in the healthcare system.
Conclusions: There are cultural barriers to engaging in the OD process and clinicians need more training on the delivery of culturally safe communication is needed. Despite this, there was a recognition that OD is important. Education about OD needs to be place based, culturally and linguistically appropriate, informed by local knowledge, delivered in community, and occur before a family member is admitted to ICU.