Ruman Tiwana, Atiya Kamal, Dilsher Singh, Durga Prasanna Misra, Afshan Salim, Faika Usman, Holly John, George D Kitas, Sheila Greenfield, Prem Kumar, Claire Ray, Ailsa Bosworth, Ayesh Ahmad, Joti Reehal, Kanta Kumar
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We have culturally adapted an existing cognitive behavioural patient education intervention, originally designed for predominantly White populations, to address this gap.</p><p><strong>Methods: </strong>The adaptation process followed the Ecological Validity Model, comprising four phases: stage-setting and expert consultations, preliminary content adaptation, iterative content adaptation with patient partners, and finalisation with patient partners and feedback. The Theoretical Domains Framework (TDF) was employed to evaluate the relevance, acceptability, and cultural adaptation of the existing intervention. Seven South Asian Patient Experts with RA were interviewed, and their input aided in developing new content for the culturally sensitive intervention.</p><p><strong>Results: </strong>The intervention was successfully adapted to suit South Asians. Cultural adaptation involved reviewing elements of the existing intervention, including language tone, content, and metaphors. 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Key messages were visually illustrated through pictorial diagrams in a twenty-five-minute online resource.</p><p><strong>Conclusion: </strong>The first culturally adapted CVD intervention targeting South Asian individuals with RA, particularly those who are non-English-speaking, is now accessible free of charge at www.nras.org.uk/apnijung nationally and internationally.</p>","PeriodicalId":32816,"journal":{"name":"Mediterranean Journal of Rheumatology","volume":"35 2","pages":"272-282"},"PeriodicalIF":0.0000,"publicationDate":"2024-06-30","publicationTypes":"Journal Article","fieldsOfStudy":null,"isOpenAccess":false,"openAccessPdf":"https://www.ncbi.nlm.nih.gov/pmc/articles/PMC11350407/pdf/","citationCount":"0","resultStr":"{\"title\":\"Cultural Adaptation and Development of an Educational Intervention <i>'Meri Sehat, Mere Rules'</i> Relating to Cardiovascular Disease Associated with Rheumatoid Arthritis for South Asian People.\",\"authors\":\"Ruman Tiwana, Atiya Kamal, Dilsher Singh, Durga Prasanna Misra, Afshan Salim, Faika Usman, Holly John, George D Kitas, Sheila Greenfield, Prem Kumar, Claire Ray, Ailsa Bosworth, Ayesh Ahmad, Joti Reehal, Kanta Kumar\",\"doi\":\"10.31138/mjr.120623.ado\",\"DOIUrl\":null,\"url\":null,\"abstract\":\"<p><strong>Background: </strong>The cardiovascular disease (CVD) risk is elevated by 1.5 times among South Asians with rheumatological conditions like rheumatoid arthritis (RA) in the UK. 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引用次数: 0
摘要
背景:在英国,患有类风湿关节炎(RA)等风湿病的南亚人患心血管疾病(CVD)的风险要高出 1.5 倍。然而,针对这一人群的文化敏感性教育干预措施却非常缺乏。我们对现有的认知行为患者教育干预措施进行了文化改编,以弥补这一不足:改编过程遵循生态有效性模型,包括四个阶段:阶段设置和专家咨询、初步内容改编、与患者伙伴反复进行内容改编,以及与患者伙伴和反馈意见进行最终定稿。理论领域框架(TDF)用于评估现有干预措施的相关性、可接受性和文化适应性。对七位南亚 RA 患者专家进行了访谈,他们的意见有助于为文化敏感性干预措施开发新的内容:结果:成功地调整了干预措施,使其适合南亚人。文化适应包括审查现有干预措施的元素,包括语言语调、内容和隐喻。此外,通过融入行为改变技术,干预内容旨在加强人们对风湿性关节炎、与风湿性关节炎相关的心血管疾病风险的了解,并提倡健康的生活方式。新开发的教育干预措施涉及社区阻力、对健康和文化的看法、社会压力和改变的机会等主题。在一个 25 分钟的在线资源中,关键信息通过图形图像进行了直观说明:首个针对南亚 RA 患者(尤其是不讲英语的南亚 RA 患者)的文化适应性心血管疾病干预措施现在可在国内和国际 www.nras.org.uk/apnijung 免费获取。
Cultural Adaptation and Development of an Educational Intervention 'Meri Sehat, Mere Rules' Relating to Cardiovascular Disease Associated with Rheumatoid Arthritis for South Asian People.
Background: The cardiovascular disease (CVD) risk is elevated by 1.5 times among South Asians with rheumatological conditions like rheumatoid arthritis (RA) in the UK. However, there is a dearth of culturally sensitive educational interventions tailored to this population. We have culturally adapted an existing cognitive behavioural patient education intervention, originally designed for predominantly White populations, to address this gap.
Methods: The adaptation process followed the Ecological Validity Model, comprising four phases: stage-setting and expert consultations, preliminary content adaptation, iterative content adaptation with patient partners, and finalisation with patient partners and feedback. The Theoretical Domains Framework (TDF) was employed to evaluate the relevance, acceptability, and cultural adaptation of the existing intervention. Seven South Asian Patient Experts with RA were interviewed, and their input aided in developing new content for the culturally sensitive intervention.
Results: The intervention was successfully adapted to suit South Asians. Cultural adaptation involved reviewing elements of the existing intervention, including language tone, content, and metaphors. Moreover, by incorporating behaviour change techniques, the content was designed to enhance understanding of RA, CVD risk associated with RA, and promote a healthy lifestyle. The newly developed educational intervention addressed topics such as community resistance, perspectives on health and culture, societal pressure, and opportunities for change. Key messages were visually illustrated through pictorial diagrams in a twenty-five-minute online resource.
Conclusion: The first culturally adapted CVD intervention targeting South Asian individuals with RA, particularly those who are non-English-speaking, is now accessible free of charge at www.nras.org.uk/apnijung nationally and internationally.