姑息治疗保护外衣上的漏洞:马蒂厄-西蒙内(Mathieu Simonet)的《母性》(La maternité)和爱德华多-贝尔蒂(Eduardo Berti)的《理想的存在》(An Ideal Presence)。

IF 0.2 4区 文学 0 LITERATURE LITERATURE AND MEDICINE Pub Date : 2024-01-01 DOI:10.1353/lm.2024.a935837
Julia Pröll
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引用次数: 0

摘要

在爱德华多-贝尔蒂(Eduardo Berti)的长篇小说《理想的存在》(2020 年)和马蒂厄-西蒙内(Mathieu Simonet)的长篇小说《母性》(2012 年)中,临终者的亲属和姑息治疗专业人员都有发言权。他们的经历凸显了姑息治疗外衣上的 "漏洞",因为姑息治疗永远无法完全保护临终病人。然而,他们也提出了为照护者本身提供姑息治疗的问题。这种保护需求在两部小说中都得到了表达,即在对临终病人的关怀和远离其痛苦的自我关怀之间找到适当的分寸,这有可能与临终关怀运动所采用的低技术、高接触的方法相冲突。通过揭示姑息关怀的局限性,这些(自)虚构的描述可能会防止人们对这一重要医疗领域抱有过高的期望。
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Holes in the Protective Cloak of Palliative Care: Mathieu Simonet's La maternité and Eduardo Berti's An Ideal Presence.

In the novels An Ideal Presence (2020) by Eduardo Berti and La maternité [Maternity] (2012) by Mathieu Simonet, relatives of the dying and palliative care professionals are given a voice. Their experiences highlight "holes" in the cloak of care, which can never protect the terminally ill completely. However, they also raise the question of a pallium for the carers themselves. This need of protection, expressed in both novels by a concern to find the right dosage between caring presence for the terminally ill and self-caring distance from their suffering, risks clashing with the low-tech, high-touch approach associated with the hospice movement. By exposing the limits of palliative care, these (auto-)fictional accounts may prevent inflated expectations in this important medical field.

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来源期刊
CiteScore
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期刊介绍: Literature and Medicine is a journal devoted to exploring interfaces between literary and medical knowledge and understanding. Issues of illness, health, medical science, violence, and the body are examined through literary and cultural texts. Our readership includes scholars of literature, history, and critical theory, as well as health professionals.
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