信息学教育特刊:< 将多样性、公平性、包容性和无障碍性纳入健康信息学教育的数据讲故事模式 >。

IF 2.1 2区 医学 Q4 MEDICAL INFORMATICS Applied Clinical Informatics Pub Date : 2024-08-30 DOI:10.1055/a-2407-1329
Grace Gao, Christie Martin, Alvin Dean Jeffery
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引用次数: 0

摘要

背景:健康信息学教育在将多样性、公平性、包容性和可及性(DEIA)原则纳入课程和利用数据的公平性考虑方面至关重要。将临床驱动数据与其他数据集整合,对于全面了解患者护理的人口统计、经验和结果,以创建具有公平意识的数据故事至关重要。公共可用的 "健康2030"(HP2030)资源是对学术电子病历的补充,可支持信息学教育中量身定制的学习活动,从而通过DEIA视角提高教育效用:本案例报告介绍了如何将现有的 DEI 检查表扩展为最新的 DEIA 检查表,以帮助未来的信息学家收集并批判性地评估 DEIA 特征,并使用该检查表创建注重公平的数据故事:方法:我们利用注重公平的数据叙事模型和 HP2030 框架来开发 DEIA 核对表。我们采用了非正式的认知演练来扩展 DEIA 核对表,并使用该核对表评估 HP2030 健康的社会决定因素 (SDOH) 5 个主题的数据集中的 DEIA 措施或特征:我们审查了 76 个可用的 SDOH 相关数据集,并在 DEIA 核对表的 "人口统计 "和 "技能、能力和可及性 "中分别添加了 6 项措施和 7 项措施。我们对 DEIA 清单的评估证实了 HP2030 包含了除 "宗教/信仰 "以外的所有措施。所有 DEIA 措施都与公平性和无障碍性有关,1 项与包容性有关,3 项与 "语言 "有关,6 项与 "图像 "有关:结果强调了 HP2030 人口数据资源的可获取性和全面性,考虑了 SDOH 因素,并促进了包容性数据表示,以解决健康差异问题。DEIA核对表提供了一个结构化工具,有助于在通过公平视角讲述数据故事时,对SDOH相关数据进行无偏见的数据收集和可视化。将注重公平的数据故事讲述与 HP2030 等框架相结合,可以丰富健康信息学教育,拓宽学生对健康差异的理解,并支持基于证据的干预措施,以改善健康结果。
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Special Issue on Informatics Education: < Integrating Diversity, Equity, Inclusion, and Accessibility into a Data Storytelling Model for Health Informatics Education >.

Background: Health informatics education is pivotal in integrating diversity, equity, inclusion, and accessibility (DEIA) principles into curricula and leveraging data with equity considerations. Integrating clinically driven data with other datasets is crucial to comprehensive understanding of patient care demographics, experiences, and outcomes to create equity-minded data storytelling. Publicly available Healthy People 2030 (HP2030) resources complement academic EHRs, supporting tailored learning activities in informatics education to enhance educational utility through a DEIA lens.

Objectives: This case report describes the expansion of an existing DEI checklist to an updated DEIA checklist for preparing future informaticians to collect and critically evaluate DEIA features using this checklist in creating equity-minded data storytelling.

Methods: An equity-minded data storytelling model and the HP2030 framework were utilized to develop the DEIA checklist. We employed an informal cognitive walkthrough to expand the DEIA checklist and evaluate the DEIA measures or characteristics within datasets from the HP2030 social determinants of health (SDOH) 5 topics using this checklist.

Results: We reviewed 76 available SDOH-related datasets and added 6 measures to "demographics" and 7 to "skills, abilities, & accessibility" of the DEIA checklist. Our evaluation of the DEIA checklist verified HP2030's inclusion of all measures, except "religions/beliefs." All DEIA measures were linked to equity and accessibility, 1 in inclusion, and the inclusion of 3 characteristics comprising the category "language" and 6 characteristics comprising the category "images."

Conclusion: Results highlighted the accessibility and comprehensiveness of HP2030 demographic data resources, considering SDOH factors and promoting inclusive data representation to address health disparities. The DEIA checklist provides a structured tool in facilitating unbiased data collection and visualization of SDOH-related data in data storytelling through an equity-informed lens. Integrating an equity-minded data storytelling with frameworks like HP2030 enriches health informatics education, broadens students' understanding of health disparities, and supports evidence-based interventions for improved health outcomes.

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来源期刊
Applied Clinical Informatics
Applied Clinical Informatics MEDICAL INFORMATICS-
CiteScore
4.60
自引率
24.10%
发文量
132
期刊介绍: ACI is the third Schattauer journal dealing with biomedical and health informatics. It perfectly complements our other journals Öffnet internen Link im aktuellen FensterMethods of Information in Medicine and the Öffnet internen Link im aktuellen FensterYearbook of Medical Informatics. The Yearbook of Medical Informatics being the “Milestone” or state-of-the-art journal and Methods of Information in Medicine being the “Science and Research” journal of IMIA, ACI intends to be the “Practical” journal of IMIA.
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