医院临床医生对晚期癌症患者的价值观、愿望和需求的关注,一项探索性定性研究。

Sita de Vries, Laury Pijnappel, Sigrid Vervoort, Yvette van der Linden, Saskia Teunissen, Everlien de Graaf
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引用次数: 0

摘要

背景:临床医生洞察患者的个人价值观、愿望和需求(VWN)对于指导适当的姑息治疗至关重要。研究目的深入了解医院肿瘤科临床医生对晚期癌症患者在患病过程中的个人价值取向(VWN)的探索和监测。方法:从 2012 年 2 月开始进行一项通用定性研究:从 2022 年 2 月至 2022 年 7 月开展了一项通用定性研究。在荷兰一家学术医院的门诊部招募了为晚期癌症成年患者提供护理服务的专科护士、执业护士和医学专家(正在接受培训)。通过深入的半结构式访谈和对门诊咨询的参与式观察收集数据。两名研究人员采用主题分析法对数据进行了合作分析。研究结果11 名临床医生(33-64 岁,8 名女性)参与了研究;共进行了 7 次访谈和 13 次观察。临床医生如何探索和监测患者的 VWN,取决于他们的意见,这些意见源自临床医生的个人价值观和工作经验。这些都受到当地合作的影响。确定了三个主要观点:(1) 提供安全性,(2) 支持医疗决策,以及 (3) 确保一致性。每个临床医生的做法各不相同。据观察,护理和治疗与患者大众健康网的一致性有限。结论:临床医生认识到探索和监测患者自愿观察网的重要性,但在讨论这些主题时缺乏系统的方法。患者应积极参与有关其 VWN 的交流,而不是主要向其提供医疗信息。患者报告结果衡量标准可能有助于促进有关患者自愿放弃治疗的沟通,并可改善医院癌症护理中适当的姑息治疗。
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Attention to the Values, Wishes and Needs of Patients With Advanced Cancer by Hospital Clinicians, an Exploratory Qualitative Study.

Context: Insight into patients' personal values, wishes, and needs (VWN) by clinicians is essential to guide appropriate palliative care. Objective: To gain insight into the exploration and monitoring of the VWN of patients with advanced cancer during the illness trajectory by hospital oncology clinicians. Method: A generic qualitative study was conducted from February 2022 to July 2022. Specialized nurses, nurse practitioners and medical specialists (in training) providing care to adult patients with advanced cancer were recruited at an outpatient clinic in a Dutch academic hospital. Data were collected using in-depth semi-structured interviews and participatory observations of outpatient clinic consultations. Data were analyzed collaboratively by two researchers using thematic analysis. Results: Eleven clinicians, aged 33-64, 8 females, participated; 7 interviews and 13 observations were conducted. How clinicians explored and monitored patients' VWN was based on their opinions, originating from the clinicians' personal values and work experiences. These were influenced by the local collaboration. Three key opinions were identified: (1) providing safety, (2) supporting medical decision-making, and (3) ensuring alignment. Individual clinicians' approaches varied. The alignment of care and treatment with the patient's VWN was observed to be limited. Conclusion: Clinicians acknowledged the importance of exploring and monitoring patients' VWN but lacked a systematic approach in discussing these topics. Patients should be actively engaged in communication regarding their VWN rather than primarily being provided with medical information. Patient-Reported Outcome Measures may be beneficial in facilitating communication regarding the patient's VWN and could improve appropriate palliative care in hospital cancer care.

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