后台的秘密导演死亡守夜

IF 2.2 3区 医学 Q2 HEALTH CARE SCIENCES & SERVICES Journal of palliative medicine Pub Date : 2024-12-01 Epub Date: 2024-09-06 DOI:10.1089/jpm.2024.0146
Debra Parker Oliver, Allison Donehower, Karla T Washington, Jacquelyn J Benson, Masako Mayahara, Patrick White
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引用次数: 0

摘要

背景:大多数安宁疗护患者年龄在 65 岁以上,大多数安宁疗护死亡发生在私人家中。随着安宁疗护病人病情的发展,死亡变得迫在眉睫,家人和朋友会聚集在一起道别。这些私人守夜是安宁疗护体验的高潮,反映了安宁疗护的优势和挑战。本研究的目的是探讨安宁疗护工作人员在死亡守夜中的故事和经验,揭开居家死亡的秘密,并找出实现美好死亡的障碍。研究方法对代表 11 家不同安宁疗护机构的 25 名安宁疗护工作人员的访谈进行了定性分析,探讨了指导和管理守夜体验的情感和挑战。根据埃尔文-戈夫曼(Erving Goffman)的戏剧模式,深入探讨了这种体验,揭示了一种私人体验,希望能启发公众了解居家死亡的外观和感觉。故事的共同编码以及安宁疗护护士和医生对研究结果的验证确保了数据的可信度。结果:安宁疗护工作人员分享了与死亡守夜体验相关的家属和护理人员负担、症状管理的挑战、人员短缺的挫折感以及行政负担等方面的叙述。结论:家属和安宁疗护临床医生在家中进行临终关怀的经历有时会受到临终时家庭护理间歇性的挑战。
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The Secrets of the Backstage: Directing Death Vigils.

Background: The majority of hospice patients are over the age of 65, and the majority of hospice deaths occur in private homes. As a hospice patient's disease progresses, death becomes imminent and family and friends gather around to say good-bye. These private vigils are the culmination of the hospice experience and reflect both the strengths and the challenges surrounding hospice care. The purpose of this study was to explore the stories and experiences of hospice staff with death vigils, unveiling the secrets of home deaths and identifying barriers to a good death. Methods: Qualitative analysis of interviews with 25 hospice staff representing 11 different hospice agencies explored the emotions and challenges of directing and managing the vigil experience. Based on Erving Goffman's dramaturgical model, the experience is explored in depth to unveil a private experience in hopes of enlightening the public on what death in the home looks and feels like. Co-coding of stories and validation of findings by hospice nurses and physicians assure the trustworthiness of the data. Results: Hospice staff share narratives related to family and caregiver burden, challenges with symptom management, frustrations with staffing shortages, and administrative burdens surrounding the experience of death vigils. Conclusions: The family and hospice clinician's experiences with the final act of dying at home are sometimes challenged by the intermittent nature of home care during the final days.

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来源期刊
Journal of palliative medicine
Journal of palliative medicine 医学-卫生保健
CiteScore
3.90
自引率
10.70%
发文量
345
审稿时长
2 months
期刊介绍: Journal of Palliative Medicine is the premier peer-reviewed journal covering medical, psychosocial, policy, and legal issues in end-of-life care and relief of suffering for patients with intractable pain. The Journal presents essential information for professionals in hospice/palliative medicine, focusing on improving quality of life for patients and their families, and the latest developments in drug and non-drug treatments. The companion biweekly eNewsletter, Briefings in Palliative Medicine, delivers the latest breaking news and information to keep clinicians and health care providers continuously updated.
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