患有镰状细胞病的青少年的生育力、家庭建设和避孕:范围界定审查

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摘要

目的了解患有镰状细胞病(SCD)的青少年对生育、家庭建设和避孕的认识现状。我们旨在确定这些领域的沟通策略和咨询方法的建议和指导。设计全文发表在同行评审期刊上,以 SCD 患者为研究对象,涉及患者或家属对生育、家庭建设或避孕知识的文章均被收录。我们使用 PubMed、CINAHL、Ovid MEDLINE、Embase 和 PsycINFO 进行了全面检索。结果 在筛选出的 2,885 篇出版物中,有 314 篇进行了全面审查,其中 11 篇被纳入。在纳入的研究中,三项只讨论了生育问题,两项只讨论了家庭建设问题,两项只讨论了避孕问题,两项讨论了避孕和生育问题,一项讨论了避孕和家庭建设问题,一项讨论了生育和家庭建设问题。研究发现了两个主要差距:缺乏向患有 SCD 的亚健康人群提供的与生殖保健相关的咨询服务,以及亚健康人群对自身疾病后遗症的了解有限。此外,以往有关这些主题的咨询指南非常有限,导致患者和临床医生就这些主题进行的讨论不完整且差异很大。本综述强调了咨询建议,以及需要更多具体指南和证据的领域,这对规范青少年 SCD 群体的综合生殖保健非常重要。
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Fertility, family building, and contraception in adolescents and young adults with sickle cell disease: a scoping review

Objective

To identify the current state of knowledge among adolescent and young adults (AYAs) with sickle cell disease (SCD) on fertility, family building, and contraception. We aimed to identify recommendations and guidance for communication strategies and counseling methods in these areas.

Design

Full-text publications were included if they focused on individuals with SCD, were published in English in peer-reviewed journals, and addressed patient or family knowledge of fertility, family building, or contraception. A comprehensive search using PubMed, CINAHL, Ovid MEDLINE, Embase, and PsycINFO was performed. Multiple reviewers independently assessed each abstract for inclusion, and a senior librarian resolved disagreements.

Results

Of 2,885 publications screened, 314 underwent full review, and 11 were included. Of the included studies, three discussed fertility only, two discussed family building only, two discussed contraception only, two discussed contraception and fertility, one discussed contraception and family building, and one discussed fertility and family building. Two overarching gaps were identified: a lack of counseling related to reproductive healthcare provided to AYAs with SCD and limited knowledge regarding their own disease sequelae.

Conclusion

Many AYAs are not counseled and are not knowledgeable about their fertility risks, family building options, and contraception choices. Furthermore, previous counseling guidelines on these subjects are limited, leading to incomplete and highly variable discussions between patient and clinicians on these subjects. This review highlights counseling recommendations and areas in which more concrete guidelines and evidence are important for the standardization of comprehensive reproductive healthcare in the AYA SCD population.

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来源期刊
F&S reviews
F&S reviews Endocrinology, Diabetes and Metabolism, Obstetrics, Gynecology and Women's Health, Urology
CiteScore
3.70
自引率
0.00%
发文量
0
审稿时长
61 days
期刊最新文献
Stressed out: how forces from uterine contractions influence fibroid progression, a Narrative Review Polycystic ovary syndrome and miscarriage: a narrative review Fertility, family building, and contraception in adolescents and young adults with sickle cell disease: a scoping review Biomarkers to predict improvement of sperm parameters and hypogonadism after varicocele repair The composition of menstrual fluid, its applications, and recent advances to understand the endometrial environment: a narrative review
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