Alfie Thain, Petra Visser, Kathryn Hart, Ebba Nexo, Andrew McCaddon, Luciana Hannibal, Bruce HR Wolffenbuttel, Ralph Green, Nicola Ward, Catherine Heidi Seage, Julian Owen, Katrina Burchell, Marie-Joe Dib, Kourosh R Ahmadi
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引用次数: 0
摘要
目的 恶性贫血（PA）的特点是由于自身免疫介导的胃顶细胞和内在因子的丧失而导致维生素 B12 缺乏。恶性贫血协会（PAS）通过詹姆斯-林德联盟（JLA-PSP）的优先事项设定伙伴关系确定了有关 PA 的 10 项优先研究事项。这项研究旨在对 PAS 成员进行调查，以确定一组患者并描述其特征，从而形成 PA 研究资料库。
Patient-Reported Characteristics of Pernicious Anaemia: A first step to initiate James Lind Alliance Priority Setting Partnership Driven Research
Objective Pernicious anaemia (PA) is characterised by vitamin B12 deficiency due to autoimmune-mediated loss of gastric parietal cells and intrinsic factor. The Pernicious Anaemia Society (PAS) identified 10 research priorities for PA through a James-Lind Alliance Priority Setting Partnership (JLA-PSP). This study aimed to survey PAS members to identify and characterise a cohort of patients to form a PA research repository.
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