评估需求、挑战和重新设计方面的考虑因素,为印度不同地区愿意就地养老和死亡的老年人提供文化敏感的姑息关怀支持和服务。

4区 医学 Q2 Nursing Annals of palliative medicine Pub Date : 2024-09-09 DOI:10.21037/apm-23-527
Preeti Pushpalata Zanwar, Jahnavi Yalamanchili, Sisi Hu, Leah V Estrada, Zaliha Omar, Zahra Rahemi
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引用次数: 0

摘要

随着全球老年人口的持续增长,与管理多种慢性病(MCCs)或多病症相关的挑战凸显了对姑息关怀日益增长的需求。姑息关怀的偏好和需求因环境、地点和文化的不同而大相径庭。因此,有必要进一步明确在不同环境下什么是姑息关怀。我们的目标是以国际视角介绍印度--一个文化多元、幅员辽阔的古老东方中等收入国家--的姑息关怀。在这篇叙事性综述文章中,我们在为印度就地养老的老年人重新设计姑息关怀时考虑了三个问题:(I)个人及其家庭对姑息关怀的需求是什么?(二)哪些姑息关怀领域对评估生活质量(QoL)的改善至关重要?(III) 哪些患者报告的衡量标准是姑息关怀的基本考虑因素?为了解决这些问题,我们根据以下关键领域提出了建议:社会、行为、心理、文化、精神、医疗、丧亲、法律和经济。通过使用已建立并被广泛报道的老龄化和健康差异概念框架,我们介绍了这些领域如何在个人或家庭成员、社区、机构和医疗系统等多个影响层面上实现理想的 QoL。为了使姑息关怀在多样化的印度得到更广泛的采用、覆盖和普及,我们得出结论:必须对姑息关怀进行仔细、系统的重新设计,使其适合当地文化并以社区为中心,将传统、个人偏好、语言、教育和医疗机构提供的支持和服务、社区组织和政府纳入其中。此外,国家政府保险计划(如 Ayushman Bharat Yojna)也可明确规定姑息关怀服务,从而使所有人,无论其支付能力如何,都能负担得起姑息关怀服务。总之,我们将姑息关怀领域纳入对整个人及其家庭的关怀,并由一系列利益相关者提供服务支持的考虑因素,广泛适用于印度和全球各地喜欢就地养老和就地死亡的不同文化背景的老年人。
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Assessment of needs, challenges, and re-design considerations for culturally sensitive provision and delivery of palliative care supports and services for older adults who prefer to age and die in place in diverse India.

As the global older adult population continues to grow, challenges related to managing multiple chronic conditions (MCCs) or multimorbidity underscore the growing need for palliative care. Palliative care preferences and needs vary significantly based on context, location, and culture. As a result, there is a need for more clarity on what constitutes palliative care in diverse settings. Our objective was to present an international perspective on palliative care in India, a culturally diverse and large ancient Eastern middle-income country. In this narrative review article, we considered three questions when re-designing palliative care for older adults aging-in-place in India: (I) what are the needs for palliative care for persons and their families? (II) Which palliative care domains are essential in assessing improvements in the quality of life (QoL)? (III) What patientreported measures are essential considerations for palliative care? To address these questions, we provide recommendations based on the following key domains: social, behavioral, psychological, cultural, spiritual, medical, bereavement, legal, and economic. Using an established and widely reported conceptual framework on aging and health disparities, we provide how these domains map across multiple levels of influence, such as individual or family members, community, institutions, and health systems for achieving the desired QoL. For greater adoption, reach, and accessibility across diverse India, we conclude palliative care must be carefully and systematically re-designed to be culturally appropriate and community-focused, incorporating traditions, individual preferences, language(s), supports and services from educational and health institutions, community organizations and the government. In addition, national government insurance schemes such as the Ayushman Bharat Yojna can include explicit provisions for palliative care so that it is affordable to all, regardless of ability to pay. In summary, our considerations for incorporating palliative care domains to care of whole person and their families, and provision of supports of services from an array of stakeholders broadly apply to culturally diverse older adults aging in place in India and around the globe who prefer to age and die in place.

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来源期刊
Annals of palliative medicine
Annals of palliative medicine Medicine-Anesthesiology and Pain Medicine
自引率
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发文量
231
期刊介绍: Annals of Palliative Medicine (Ann Palliat Med; Print ISSN 2224-5820; Online ISSN 2224-5839) is an open access, international, peer-reviewed journal published quarterly with both online and printed copies since 2012. The aim of the journal is to provide up-to-date and cutting-edge information and professional support for health care providers in palliative medicine disciplines to improve the quality of life for patients and their families and caregivers.
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